The symptoms of Wilson’s Temperature Syndrome are classic symptoms of slow metabolism as in hypothyroidism. A patient doesn’t have to have all the symptoms to respond well to T3 therapy. In fact, they may only have one. Low body temperatures can affect people differently, and can be the cause of many different symptoms, as shown in the chart below. (Physicians can learn more about treating Wilson’s Temperature Syndrome HERE)
(You can click here for a more complete, printable checklist you can use to track your progress before, during, and after treatment. You may need to download the free Acrobat Reader in order to view and print the checklist)
|Decreased Memory & Concentration||Heat and/or Cold Intolerance||Abnormal Swallowing Sensations|
|Insomnia||Constipation||Easy Weight Gain|
|Low Motivation & Ambition||Irritable Bowel Syndrome||Muscle and Joint Aches|
|Dry Skin & Hair||Hives||Asthma|
|Allergies||Brittle Nails||Slow Healing|
|Sweating Abnormalities||Carpal Tunnel Syndrome||Raynaud’s Phenomenon|
|Low Sex Drive||Easy bruising||Unhealthy Nails|
|Ringing of the Ears||Flushing||Bad Breath|
|Dry Eyes/Blurred Vision||And Others…|
My husband has both low and hyper thyroid syndrome he fluctuates. his dr has had him on Levothyroxine 0.50MG One every am.We noticed after he started taking the medication he no longer sweats.He use to sweat profusely.Now he never sweats he just gets hot and really tired just trying to mow the lawn on a riding mower is difficult for him.He also has G6PD and Essential Thrombocytosis which fight each other.He has had one stroke and has a small aneurysm in the assending valve on his aorta the dr. is watching because at the size it is the surgery is more dangerous than the aneurysm.he has low O2 sats because he previously was a smoker and he has emphasema and copd. I am just greatful for every day he wakes up beside me.Several times he has given me serious reason for concern battles with the Stroke,Sever Anemia,High Plateletts,a egg sized bladder stone,Extremely low O2.
Do you think your T3 treatment will help him?
T3 therapy is not without risk. Just like the surgeon decided that the risk of surgery may not be worth the benefit, that might hold for T3 therapy as well. If he has a low temperature on Synthroid then he might feel better if he could get his temp to normal on T3…but that might be more risk than it’s worth. Some people with low adrenal function don’t sweat. He may benefit from adrenal support. Best wishes.
How can I get a doctor to take me seriously when I say that there is something wrong with my thyroid? I have had numerous tests done always coming back as but I have weight gain,hair loss,bad breath,bad nails,headaches, etc. I don’t know what else to do but its getting very frustrating and difficult to continue living this way.
I understand Catherine. You can try looking for a doctor near you on our list of treating physicians on the website. You can give your doctor this link to the online Dr.’s Manual: http://www.wilsonssyndrome.com/doctors/doctors-manual/ . You can have him call 800 420 5801 and we can explain it to him. You can introduce another doctor in your area to the concept and let him treat you: http://www.wilsonssyndrome.com/patients/recruiting-a-doctor/
Good luck to you.
Sounds like a potential gluten intolerance
Hi, I’m from the UK and have been going to the doctors regularly as well as having various psychiatric tests for depression and related things. I have had MRI’s for Arnold Chiari, hospital appointments for pressure problems (not blood pressure like having teeth pulled etc) opticians for severe headaches (I have the same terrible eyesight as normal), I’m anally retentive, my blood pressure is constantly around 35.3-35.8 degrees celcius, I find it difficult to concentrate and get drowsy very easily (I spend a lot of my university lectures drawing or distracting others), get irritated very fast and very irrationally and can’t stand the cold (I shiver uncontrollably even at ‘normal’ temperatures). What do you think from those?
Hi Karla, a low temperature is enough to explain headaches, poor attention, irritability, all the symptoms you mentioned.
Hi Dr. Wilson,
Thank you for your website. I have had cold hands/feet issues my entire life, especially worse in fall/winter. In the last few years, I have developed intermittent fatigue (afternoon) that is overwhelming. I am very young still (36) and in excellent physical shape, so I was hesitant to believe thyroid could be a problem. I also consistently test high normal for cortisol (serum) throughout the day. I tried iodine/tyrosine/selenium supplementation and it raised my TSH from 1 to 2, but did nothing for my T4/T3 (free and not) levels. My T3 and free T3 are low-normal consistently. I figured the cold hands/feet were just something I was stuck with but now that I have other recent developments like poor sex drive, poor memory, and lots of joint issues, I am starting to think they may be related. I will start measuring my body temperature. Should I be aiming at cortisol/adrenals before I consider thyroid/Wilson’s?
Thyroid and adrenal problems often go hand-in-hand in the setting of stress.
Herbs can be great support for normal thyroid and adrenal function. Some doctors focus on thyroid first and then adrenal, others focus on adrenal first, then thyroid, some focus on both.
Can this syndrome cause muscle twitching ?
I don’t remember people mentioning that symptom. Therefore, I would think it’s either rare or unlikely.
I’m not studied in this area by any means… but perhaps the muscle twitching is caused by a more sever case and is an indirect symptom where the direct symptom would be stress or insomnia/fatigue which could be caused by the syndrome?
I’m no doctor, I’m just curious.
Hi Dr Wilson,
I have just discovered your website and I think I may have this problem Drs have been saying there is nothing wrong for 12 months of fatigue , dizzieness, sore joints, heavy legs and poor eyesight. My Thyroid labs appear within the normal range but my reverse t3 is quite high 593.
My temp have been averaging 36.7 degrees celcius, any advice would be great.
The temp is not very low but is low enough to maybe be having a bearing. The high RT3 may be a hint that you aren’t converting T4 to T3 very well. For ideas, please see wilsonssyndrome.com. I can’t really advise more than what is there. Best :)
Hi, I have tried T3 medication for 3 months but it failed to bring my body temperature up. I am starting another month of T3 but I am not noticing a major temperature increase. My temperature is around 35.8 – 36.2. When its around 35.8 I feel awful – migraines, muscle aches, exhausted and flu like. During the first 2 months of treatment I had palpitations and my heart rate when up to 100. However I have no symptoms now. My Doctor told my to really push up my temperature this time so I am on the second day of 90mg. My blood pressure is steady at 85 with120/80. I have hypothroidism and was on 50mg Eltroxin and my pulse rate was typically 50 – 60 previously. To day my temperature reached 36.9 but dropped back to 36.2.
Can I stay on 90mg for a few days until I start to see a temperature increase to 37 or over?
Hi Ellen, we can’t give medical advice over the internet, but we’d be happy to speak to your physician about your case. Our phone is 800 420 5801. Best :)
What does a score of 401 on the scoresheet indicate? Does this sound typical of Wilsons? My temperature is averaging 97.5 at the moment. In previous years, when my symptoms have been more pronounced, I’ve been closer to 96.7.
Even if someone had a score of 10 (just one very severe symptom) it could be explained by a low body temperature. A score of 401 indicates that you have a lot of symptoms that could be explained by a low body temperature. The fact that your symptoms get worse with lower temperatures is typical of someone with temperature-mediated symptoms.
I have been ill for 45 years since I had glandular fever (epstein barr),,,after 15 years i was told i had M.E. Still no treatment. I always knew my thyroid wasnt right and my adrenals but could never get through to doctors due to the stupid blood test system. I asked repeatedly if it were possible that the T4 in my system was’nt converting to T3(but not in those terms) but was belittled and derided. For many years i used homoeopathy and acupuncture to stay alive and half functioning until my system collapsed into mental and physical paralysis and I was put on T4 levo. I never felt well and 10 years on taking T4 closes my whole body down and I am in pain. My body teeperature never goes above 35.4 but does fluctuate. I am surviving on tiny doses of T3 which is too powerful for my damaged adrenals but I have no other way of functioning. Everything you say resonates as true for me.Ii am in the uk where doctors have no time for adrenal fatigue or treatment other than T4. I have finally found a restorative doctor with whom i want to do the sustained T3 protocol. However I have a very small thyroid due to hashimotos so I cannot survive by sorting my adrenals first..I am hoping I can do both at the same time?
Many people are supported for their adrenals and thyroid at the same time.
My temperature started to run noticeably lower (97F) around age 15. Now, 15 years later, it has dropped further and consistently runs at 95.8- 96.2F. I am very active, though I never sweat, even when running half-marathons, and occasionally any one of my toes will turn blue or purple and will be numb for thirty minutes or so. At fifteen I was diagnosed as hypoglycemic and have noticed that these symptoms are always worse the day after extreme exertion. I have always assumed that the hypoglycemia caused the other symptoms, but as my temp drops with age I am beginning to question that. There is no integrative doctor in my area to ask, but I would like to try the thyrocare supplement as it seems natural (and organic!!!), if it would be safe to without medical oversight….?
ThyroCare is like food and is like specialized groceries, it is available to the general public without a prescription. Low temps can explain symptoms of Raynaud’s Phenomenon as well as hypoglycemia.
Can a person currently being treated for hypothyroidism and taking armour thyroid meds have this?
Hi Dr. Wilson,
My daughter was born at 7 months of gestation, she is now 17 yrs old, all her life she has suffered severe constipation, and her hands and feet are constantly cold and sweaty, also she has all the time a runny/red nose, a week ago she started with a severe headache, stomach cramping, nausea, and dizzy, she was seen by 4 doctors, diagnosis 1. Migraine, 2. Viral infection, 3. Allergies, and finally the last doctor ordered an MRI which came back normal, the she ordered a complete blood panel, the office call me today and said that they are still waiting for some results but so far her thyroid is low, my daughter continues with the headache to the point that she cries during the pain episodes, but she says that she feels dizzy ,fuzzy headache, plugged up ears, constantly. Also has mentioned blurred vision at times. Her body temperature is between 97.0 – 97.8.
She was diagnosed with depression last year, Also has no energy,
A low temperature could explain some of her problems but she may have more going on as well.
for two an a half years my body temp is around 97.5 to 97.7. My problem is that my temp begiins to rise an i start sweating really bad that its dripping off me. I can set a clock to it . It happens all day an night every 40 minutes. I have been on natures thyroid for about 3 months now it has helped a little but not much. I have gained so much weight also. And when i stop sweating i start freezing cant get warm untill the next 40 minutes when it happens again. Feels like i am being set on fire an my head will explode. Any suggestions?
I have never heard that symptom before. Nature-throid is not T3-alone therapy, so there’s a difference there. Are you approaching menopause? I recommend you see a doctor on our list on the website. Best :)
I am confused as to how this is different than hypothyroidism….?? I guess I don’t get it all. I do have a question though, I have a chronically low temperature, EXCEPT when I’m at a doctor’s office. Is it that I am always bundled up because I’m so cold or know I will get cold? I usually run anywhere from 95.8-97.5, but I have found that every time I think I have a fever, I check and that is when my temperature is the lowest, yet I am hot and sweating and very uncomfortable! Is there an explanation for this?
Hi Lynnelle :)
Hypothyroidism is slow metabolism due to inadequate production of T4 from the thyroid gland evidenced by a high TSH level. Wilson’s Syndrome is slow metabolism and low body temperature due (most likely) to inadequate conversion of T4 to T3 in the cells even though TSH is normal. People can have low temperatures and still feel hot all the time or sometimes…that’s why we recommend measuring it with a thermometer.
Will this treatment work for someone that has taken the radio active iodine pill to have the thyroid gland killed off.
People that take radioactive iodine will probably need some form of thyroid hormone treatment for life. However, a LOT of those people won’t feel well on T4-containing medicine like Synthroid or Armour. Such people can often benefit from T3 therapy. Your doctor can call us at 800 420 5801 and we can discuss your case for free.
I’ve had so many varying symptoms over a period of years, first starting as an off balance sensation that is not spinning or vertigo like. Over time, I started developing pain in my neck, upper back, and shoulders. There are definitely trigger points involved. Now it seems to be spreading. I’ve had issues with anxiety (or that’s what they said it was) and some days especially later in afternoon I’ll feel a tremulous type of fear feeling I can’t really explain. I’ve been exploring the web and was already fairly certain a thyroid condition could explain it. A couple of years ago my TSH was 3.18 (up from 2.72 a couple of years before that). Just getting over a “bug” of some kind so had been taking my temp. Just casually have noted it is usually lower than normal. I found a doctor listed on your site who is within easy travel distance. Would any doctors on your list be “up” on other thyroid issues as well? From my reading I’ve noted that even many leading endocrinologists don’t support treating TSH levels according to newer standards, even if patient has symptoms, and many will refuse Armour, preferring to use Synthroid. I am also very irritable and quick to anger sometimes for no real reason. I just am so overwhelmed I can’t bear the thought of wading through doctor after doctor trying to find one who is aware of these approaches. I also have a hard time sleeping, now partly due to pain, but prior to any other symptoms as well.
Yes, a low temperature can explain your symptoms. T3 alone is often better than T4-containing medicine like Synthroid or Armour. It’s good that there is someone on our list close to you. That sounds promising. Many doctors on our list are familiar with Hashimoto’s and Graves’ disease as well. We often recommend T3 even when TSH is 2.0 or below (if the person has a low temperature). It is hard wading through doctors and we provide the list of treating physicians to hopefully simplify that. However, unfortunately there is no guarantee that anyone on our list will be a good match for you. We are happy to discuss your case with any of your doctors, for free. 800 420 5801.
Hello, do you have any Canadian doctors i live i n NEW Brunswick but am moving to BC in a couple months. Pr can inhave private blood drawn and have you look at the results…?
Hi Jenn, You can look on the Doctors Tab of our website…and you can call Kripp’s Pharmacy in British Columbia, Canada. (604) 687-2564 to see if they know anyone.
Hello Dr. Wilson,
As far back as I remember I’ve never had a temperature above 98.6 unless I am not feeling well. My body temp is usually around 97.4-97.5. I do struggle with Fatigue, anxiety, depression, decreased Memory & Concentration, Extreme Cold Intolerance, Muscle and Joint Aches, Dry Skin & Hair, Brittle Nails, sweating Abnormalities, Carpal Tunnel Syndrome,, Itchiness, unhealthy nails, bad Breath, Dry Eyes/Blurred Vision.
Should I consider my body temperature normal or should I do more investigating into the possibility that these symptoms (especially the cold intolerance) can be correlated with my body temp.
I wouldn’t consider your temps normal since they sound low enough to me to easily explain all the symptoms you’re having. Your symptoms might not all disappear with a normal temp, but they might, that’s why I think temp should be considered first not last.
Hi I have
s_tsh ….0.04 uIU/ml
And FT4…..19.1 pmo1/ml
I have had t3 but no results yet but judging by these levels do I need more or less eltroxin.
Sorry Patty, I can’t give medical advice over the internet. Also, I don’t usually recommend eltroxin to normalize body temperature.
Hello Dr. Wilson!
I am 26 years old, pretty healthy ( no major medical issues). I recently found out that I have WTS, I have all but just a couple of the symptoms. I have been seeing a homeopathic doctor here in the state that I live in. I have been married for about a year and my husband and I are wanting to start a family. We aren’t having a lot of luck because of the lack of menstrual cycles. I have taken birth control, provera things like that will bring it on, but I don’t think I’m ovulating, could you recommend anything natural that I can take to bring on ovulation? Any suggestions or recommendations would be very helpful and much appreciated. Thank you for taking the time out of your busy day to help!!
Yes Courtney, if you have your doctor call us at 800 420 5801 we can discuss some recommendations for you (for free). We can’t give medical advice to the public over the internet.
I have been suffering for the past 6 years with episodes of extreme sweating and very low body temperature. It happens every few months. Ive been to many drs all say its my thyroid but tests come back normal. I think my average temperature is normal but will start checking tomorrow 3 times a day. I do seem to suffer from many of the symtoms listed. Is this in your opinion something I should go to my dr with as a suggestion for my issue. What kind of Dr should I go see an Internalists or endochronologist? Any suggestion grately appreciated. I live in Jordan but I’m originally Irish.
Yes, low temps could explain excessive sweating. Most doctors that treat Wilson’s Temperature Syndrome heard about it from their patients. A general practice or family doctor might be more willing to help you.
Ive been type 1 diabetic for 11 years. I started having hypothyroid symptoms 4 years ago. Ive been on all the psych meds from antidepressants to an antipsychotic! All my blood tests for thyroid are normal except for rt3 and free t3 are a little off. Ive tried honestly everything from natural to pharmaceutical. The only thing that ever made me feel better was thyroid medication first armour and then levothyroxine however I never could keep on them cause my throat would get irritated and felt like my thyroid was swelling up. So id feel better but then my throat would swell. Did I mention my temperature was averaging 96.6 Or lower Ive used adaptogens and all for my adrenals the only thing that worked is the thyroid medication. Im looking into talking to the doctors at holtorf who im praying know how to fix this. In general I can only come up with I have Wilson’s temperature syndrome, or ill have to remove my thyroid and be on hormones that way hopefully my throat wont feel like its irritated. Does this sound familiar? And if holtorf doesnt work out is there anyone who knows what they’re talking about when it comes to type1 diabetes and why I feel better on thyroid medication but my throat feels horrible and wont go away?
Dr. Holtorf’s clinic should be able to help you. He is a contributing author on my upcoming book on Thyroid problems, including WTS. Sometimes people can get abnormal throat and swallowing sensations when their thyroid glands or treatment are not optimized. Hopefully, you could be managed successfully around that.
I’m wondering if you have any information about Hypothyroidism in relation to high altitude. I was just recently diagnosed as severely hypothyroid. I live at 8000 feet, I moved there about 3 1/2 years ago. For the first year and a half I was fine, actually doing well. Then I started getting more and more fatigued, lack of motivation, not sleeping well at all. I’ve read that the altitude can affect the thyroid. We have family at low altitude and frequently go down to visit. I’ve noticed that I have much better energy down the mountain than in the altitude.
That’s very interesting. I’m not familiar with a correlation between altitude and hypothyroidism. Of course, many people feel better going down the mountain, at least for a time, because their blood cells are adapted for thinner Oxygen levels, and then at lower altitudes there is more oxygen. So now they have plenty of red cells and plenty of oxygen so they feel stronger. I can see how living in high altitudes with low oxygen might be taxing for some people.
Thank you! I do understand.
Thank you! I understand & I appreciate your feedback!
Hello, I just had my thyroid removed 10 weeks ago and have now suffered with anxiety. We are still uping my dose of thyroid medicine I just go blood work back my TSH level is 9, she then put me on 88mg synthroid and we are waiting on the adrenal gland test. I want to know what is causing my anxiety!!!!???
Low body temperatures can cause anxiety.
Two questions. Is it possible to have Graves Disease and this? My thyroid levels are all normal and have been for several years, but I began having a lot of the symptoms described here very recently during an extremely stressful time. One of my biggest problems is chronic stomach upset (along with migraine, inability to lose weight no matter what type of diet, fatigue, sweating, always cold, etc.). Anyway, all the gastro tests have come back normal and I’m wondering if stomach upset/nausea/heartburn/IBS-type issues are included in low temperature syndrome symptoms?
Absolutely, a low temperature could explain your problems. And yes, people with Graves’ can still have low body temperatures.
I had a pheochromocytoma on my left adrenal gland in 2000, both were removed(benign) and up to April 2013 I was very healthy(no meds at all) I stopped sweating after the removal of tumor and adrenal gland and BP has been low as well as heart rate and I’m always cold.
Last year, April 2013, all these symptoms came at around the same time- postural hypotension, headache, joint and muscle pain, carpel tunnel syndrome, memory problems, brain fog, severe fatigue, weight gain, high cholesterol(LDL- high- HDL is good), vision problems. I have had numerous tests done on adrenals- testosterone and DHEA extremely low, TSH normal, T4 low normal. T3 has never been tested.
I started monitoring my temperature and over the last two weeks, I’m averaging 35.5 , the highest reading has been 35.9
Does this sound like I have syndrome? and what is needed to confirm this ? treatment?
Wilson’s Temperature Syndrome and a low body temperature could easily explain your situation. Yes, treatment is the confirmation, it’s a therapeutic trial. Best :)
feel fatigued, weak nauseous and cannot tolerate heat. I am extremely anxious, can\’t handle any stress whatsoever. I have palpitations everyday. My thyroid tsh is 0.09 and free t3 high at 5.95(range 3-5) total t3 is 1.6 ( range 0.9-2.5)t4 is 15 ( range 9-21). My endocrinologist says this result is normal. Im not sure why I feel so ill as I\’ve had a lot of blood tests done and nothing else is abnormal. They haven’t tested my adrenals. Please can someone advise me? My temperature is around 36.1
A low temperature such as yours could explain those symptoms, regardless of what your blood tests say. When we want to know how fast our car is going we look at the speedometer, not the gas gauge.
Hello this site has so much great information!!
I’m 40 year young with type 1 Diabetes since I was 10 years old using insulin to control my blood levels. Graves’ disease also has controlled my life since I was 25. Unfortunately radio active Iodine more than 15 ago was used to fix the then hyperactive thyroid. Synthroid has been my regiment since then. I’m convinced that restoring my thyroid and pancreas is the only way. I’ve choose a new healthier alternative lifestyle such as a vegan diet along side vitamins and herbs to attempt this goal. Although this has has shown significant improvements with controlling sugar levels lately I’ve had no great success when I chose stop taking the high dose of Synthyroid. Trying kelp, Ltyrosine, and other supplements hasn’t been effective and it seems as I’m falling backwards now. Any suggestions would be more than… Thanks
If your temperatures remain low on Synthroid then you might benefit from T3 therapy.
Should the T3 be taken on empty stomaach; away from other supplements, or does it not matter? First early morning dose is easy, empty stomach. But pm dose may be at dinner time. Can you have it with food?
It’s so much more important to take the sustained-release T3 medicine on time that we do not mention and concern taking it with food.
I just googled low temperature and found this website.
My temperature went up to 38.3 last Wednesday night. It went back to ‘normal’ within 24 hours. Yesterday it was 35.5 and today was 35.1. It is winter but that wouldn’t explain why the temperature was high last week.. Have you seen temperature swings like this before?
I have seen the temperature fluctuate, that’s why we recommend taking the average. However, it does seem unusual that it would be so high last week. Could have been due to an infection? Or maybe it is fluctuating to an abnormal degree.
I have had tingling/numbness in my hands and feet that come and go, mostly in the morning or after I’ve run. Good this have something to do with my lower temperature of 96.8-97.8?
It’s possible. Numbness can tingling can be due to fluid retention. Fluid retention can come from low temperatures. Temperatures are low in the morning. Not sure why it might be worse after a run.
Can WTS be successfully treated with ThyroCare and Adaptogen alone? If so, is there a recommended dosing protocol?
Since ThyroCare and Adaptogen are sold as dietary supplements no statement can be made about them treating, preventing, or curing any disease or medical problem. Suggested dosing is on the bottles.
I have known that my body temp. stays low for many years, never gave it much thought. But as I’ve aged (I’m 63) I have noticed many symptoms that always seem to point to a thyroid problem but, my labs always come back within normal range. My symptoms are low body temp. (averaging 97.2 97.4 range, thinning eyebrows, bad nails, weight gain (I don’t overeat),confusion, brain fog, easy bruising, flushing, very poor short term memory, headaches which are worse in the morning, also terrible insomnia, fatigue (feel like doing nothing) and weird racing thoughts, especially at night. I have made an appointment with a doctor in Huntsville Al. (Dr. Elizabeth Giles) at the UAB medical center. I am from Huntsville but currently live in south Louisiana. What I’d like to know is what can I do, if anything, to help her diagnose me? I’m keeping a daily log of my temp. but because this is going to be a long distance Dr./patient relationship, I’m wondering if there’s anything else I could do to help the process? Also, I’ve read that patients normally have to return to their WTS doctors several times during the treatment period and was wondering if that is correct. If so I’ll have to make a few extra trips home this year. Would appreciate any comments you might have.
The temperature log is the main thing you can do to prepare and repeat visits are typical of the treatment protocol. Good luck :)
Hi I have a variation of hashimotos, currently being monitored by an endocrinologist, I have constant fluid retention in the eye lids, and can identify with 90% of the anymore list, is it worth asking.g for a test for Wilson’s syndrome
Absolutely good idea to check your temperature. You can ask your endocrinologist about Wilson’s Syndrome but he may not recognize or treat the condition.
Hi! I have been being treated for RA (sero-negative) and Fibromyalgia for 8 years or so now. The one thing that my doctors never believed (or couldn’t explain) is that my temperature is normally (?) 97.5 or lower. I noticed most of the symptoms of Wilson’s are the same as Fibro……whenever they have tested my Thyroid the results were always normal. Could I actually have Wilson’s?
Yes, that’s quite possible. Many patients’ fibromyalgia has resolved completely when their temperatures were normalized with treatment.
I have had hot flashes for a long time now, about 14 years, and no one can find out what is wrong with me. When I wake, my temperature is about 97.4, then I get up and right away I start to sweat so bad it drips off of my face and the whole body is involved. It makes me nauseated. I feel like my body is going to burst out in flames. I have been treated for menopause with little relief. My TSH is normal but I still have these “hot flashes” and I do not think the are related to estrogen. Am going to the doctor in a couple of days, so how do I get my doctor to consider WTS and take me seriously? These “hot flashes” occur all day long with no rhym or reason and they are really getting me down.
Here is some information about talking with your doctor: http://www.wilsonssyndrome.com/patients/recruiting-a-doctor/
I have found a doctor who treats Wilson’s Temperature syndrome (yay!), but if I also have adrenal issues, is treating for the WTS first the best idea? Or does treating for WTS deal with both the adrenals and the thyroid? My reverse T3 is off the chart, while my other thyroid numbers look “normal”, my average basal temperature over 6 days is 96.3 (with fluctuations from 95.3 one day to 97.5 another. My nighttime salivary cortisol is off the chart as well. Many other symptoms of thyroid/adrenal problems. Where do I start as far as treatment goes?
Thanks for your guidance!
Doctors sometimes treat thyroid first then adrenal if necessary, others treat adrenal first then thyroid if necessary, others treat both at the same time. People with low adrenal function sometimes don’t tolerate T3 very well. That’s why many doctors will support the adrenals when indicated before treating with T3.
Holy cow! I have gone to 5(!) endocrinologists, all kinds of specialists and NO ONE could explain this! I didn’t know what Raynaud’s Phenomenon was until I read it – I’ve had that since I was a kid! My body temp is well below normal, I do sweat but it’s if I eat sugar (no, my bloodwork for sugar has been done – normal) hair falling out, mind fog, depression, dry eyes, ringing in my ears, pretty much everything on the list! The Raynaud’s was the only thing until I read it and then – 100%! Yet my T3 is ‘within range’. Now I have calcium in my urine and it’s getting scary. I cannot lost weight no matter what I do and I’m just bummed about it. Got my hair cut to cover my hair loss, I even have a goiter for crying out loud and have had since I was 50 yet NOT ONE DOCTOR has done a damn thing! I do not know any doctors who will listen to me however and that’s the sad part. I don’t know what to do. How can I FIND a doctor who is already helping people in my area? Please ADVISE ASAP!
Hi Veronica :)
Here are two resources for you:
Best of luck to you!
I have been tested for thyroid for the last 28 years and 15 years ago was put on synthyroid. It started at 50 mcg, 4 years later I ended up onthe hospital for1week, found out I had celiac disease and a thyroid count at 63. I was put up to 400mcg of synthyroid per day. Since then, the Dr. has increased it to 500mcg per day. Last night I heard about armour
Living in Canada, I understand that we call it dedicated thyroid. I want to take a natural product. I also have alopecia. I have 11of the symptoms you listed above. I heard about a Dr in our city who is not with mainstream medical and practices on his own and is also well versed in thyroid concerns/help. Are there any specific questions I should ask when I see him. He’s been practicing for 20 years. My eye sight, (pain in my legs… This is new as of 10 days ago) night cramps, fatigue etc are getting to me. I have to say though that I have felt much better since the beginning of this year.
Here are some ideas of things you can say and ask:
You can ask him if he’s heard about Wilson’s Temperature Syndrome and low body temperatures and normal thyroid blood tests.
I recently went to my doctor because im always freezing cold, the doctor though it was anemia. He did many blood tests and they all came back normal, my iron levels are normal and all my thyroid tests came back normal too. My doctor diagnosed me with Wilsons tow temp syndrome and started me on Thyroid Px and Adrenal Px Balance. I did a lot of research about this condition. I looked at the symptoms list and realized i have majority of them but i always thought that it was just normal for my body or were caused by something else. I keep seeing that this syndrome can be reversed with the WT3 protocol but it does not specify what that means. I am trying to figure out if the pills i am currently taking will help my symptoms or if i am supposed to be taking something else or something in addition. I am not sure if the pills have the “t3” it says to take.
Please advise, Thank you.
The videos on this page: http://www.wilsonssyndrome.com/videos/t3-tutorial-videos/
describe a simplified version of the WT3 protocol.
The supplements you are taking do not contain T3.
Sometimes people can recover from WTS on their own with diet and exercise and stress reduction. Best regards.
Yesterday, I went to the dr and my temp was 95.8 and I asked why. She didn’t know so when I got home I typed in low body temp and found your site.
I remember having low temp of 97. For a very long time. I have been very sick for many years with no quality of life. Many years ago I would get up feeling fine and thirty min later be so sleepy I couldn’t keep my eyes open and go to bed and sleep all day and night. I never felt depressed but the dr said I was suffering from depression. After taking several antidepressants one worked. Then in 2001 I started having flu like symptoms with post nasal drip. Checked for allergies but none. The Dr put me on a round of prednisone and it worked.
Did this 3-4 times a year to keep it abay. Then about four yrs later couldn’t go below 5mg. Stayed on that for about 4 yrs and was weaned off. Now after a year it won’t work.
I feel, very tired, sleepy, ache all over, headaches, fogh, now at night burn under the skin, especially my extreminities. I can’t function without pain pills.
The Dr has done all kinds of blood work for everything he could think of and nothing.
Do you think this is my problem for all that is going on and what do you recommend?
Yes, I think low temperatures might explain some of your problems. I recommend that you review the information on wilsonssyndrome.com and possibly consult one of the physicians listed there. Best :)
Hi, Dr. Wilson,
I’m happy to be able post here! I am 50 yrs old. I’ve been on Armour for a couple years. I saw initial improvement at 2 grains, including temps closer to normal (but still low,) and then, some improvement at 3.75 grains, but I’ve been taking a 4 grain dose for two months with little change. I have had no hyper symptoms and blood pressure is good. I had a stress event a couple weeks ago and have felt worse since. I’ve been taking my temp every three hours, three times a day with a liquid metal thermometer and it’s averaging around 97.5 for the past four days.
I have about 20 symptoms of low thyroid, possibly more. I take several supplements. One problem that I do not see listed as a hypo symptom is emotional numbness and withdrawal. I feel like I have had a personality change for several years that may be permanent.
My Dr treats symptoms over labs thankfully, but he does not want to raise past 4 grains and we are meeting in a week or two to discuss other options. I don’t know why he caps it at 4 grains or if he is familiar with Wilson’s Temp Syndrome. I have had Rt3 in the past and cutting back on Armour fixed that, but I felt like I was dying on the lower dose.
The T4 in Armour can suppress the deiodinase enzyme that converts T4 to T3. I don’t recommend Armour when trying to normalize a low body temperature. I’d be happy to consult with your doctor about the T3 Therapy that I recommend on my website and in my books. Best :)
I am recently found to have low reverse t3. It was a 6 and is supposed to be over 10. I also have low cortisol. I am seeing a wonderful doctor. Finally. I am supposed to take my temp and pulse 5 times a day for 5 days. My tsh is normally under 1. I always feel.. tired but wired. I am new to this and it is hard for me to find (in english… non dr words) what low reverse t3 means. I had a surgery 2 years ago and woke up a different person, panic attacks and never ending anxiety. I have no clue whats going on with me. Besides the low rt3 I have very low vitamin d. Needless to say I’m clueless and the literature on this is confusing. The possible diagnosis is (wilson’s syndrome) or thyroid disfunction .
T4 is the thyroid hormone produced in the thyroid gland that is converted to the active thyroid hormone T3 in the tissues of the body. When T4 to T3 conversion is impaired, T4 can be converted to Reverse T3 instead. RT3 is inactive. Nevertheless, even people with a low RT3 can still have low body temperatures and respond well to T3 therapy. Low temps can explain panic attacks and anxiety. Good luck to you!
Hello dr, I am having low body temp at 97.6 and experiencing anxiety, depression, blurred vision , fatigue, brain fog …… What u suggest the possible diagnose be…. My thyroid tests were normal.
I have had low adrenal function in the past. I have been positive for Graves Disease in the past. Since I went gluten-free, I am in remission. I do have a slightly low temperature, but my blood pressure is also low… 103/60. I only have a few symptoms listed here. Could I really have Wilson’s Syndrome with a history of Graves Disease?
Yes, many people that have a history of Graves Disease are left with residual WTS, especially if they have had ablation treatment and are now taking thyroid medicine that contains T4 and they still have low temperatures and aren’t feeling well. For that matter, even a person with active Graves can have WTS. It’s possible to have low TSH and still have low temperatures and hypothyroid symptoms.
I haven’t had ablation. I don’t have many symptoms, just constipation, difficulty sleeping, and some slight inflammation. Could my lower temperature be related to my low blood pressure?
My Graves went into remission when I went gluten and GMO free. I don’t take any medication for thyroid desease.
I haven’t had ablation. I don’t have many symptoms, just constipation, difficulty sleeping, and some slight inflammation. Could my lower temperature be related to my low blood pressure?
My Graves went into remission when I went gluten and GMO free. I don’t take any medication for thyroid disease.
Hello, I suffer from ‘CFS’ for 7 years now (since giving birth to my daughter). I tried a lot and found a bit of relieve for the last year and a half. I can more or less live my life now. But there are periods like now where I feel very tired again. I take ‘L-thyroxine 50mcg’ every day. If I stop I don’t feel more tired but I do start losing my hair…So I keep taking it. I responded bad on Armour thyroid. Now; I’m from Belgium..;Is there a doctor in belgium who knows about Wilson’s syndome’ you know of? What do you think? Should I be better with your treatement? Thanks for your reaction, Jana
CFS can be worsened by low temperatures. Low temperatures can be due to WTS. T4 (Synthroid and Armour have T4) may not help WTS because T4 can suppress the enzyme that converts T4 to T3. I do not know a doctor in Belgium. However, most of the doctors that are treating WTS heard about it through their patients:
If you find an open-minded physician, I’d be happy to talk with him/her personally on the phone for free to help them get started (doctor can call 800 420 5801 to make arrangements)
My daughter visited one of the doctors on your list; we are in New York City. Since all her bloodwork came back normal, it is determined she has Wilson’s – Medaus pharmacy is in AL so is it correct we have to wait on the protocol? Can my daughter first try the Thyrocare and Adaptogen to see if she responds to those? If she can, how long before we know they would work and can she take them indefinitely? Thank you.
Dr. Wilson, I’m a 69 yr old female with TSH 3.52,(ref. 4.0) TPOab <28 (ref. 0-60), 8 A.M. serum Cortisol
11.00 mcg/dl (ref. 4.3- 22.4 ) with average body temp. 97. I have been told how normal I am test wise,
and my temperature is "normal." I have gained 40 pounds in 12 months, lethargic, apathy, cannot do
simple household tasks, just sit and stare, and the day is gone. Unrefreshing sleep, yet I pop wide awake
with racing thoughts 4 a.m. and can't go back to sleep. LAST DOCTOR ADVISED ME TO GET OUT INTO
THE SUNSHINE! Undertone- hypo-con , not Thy.
I have pretibial myxedema (shins) extreme constipation, bp 165/80, all hypo symptoms, but so far I
have only qualified, reference wise. for Lisinopril, Hydrochlorathiazide water pills,and a short dose steroid
for my carpal tunnel (diagnosed, arthritis in both hands).
Any hopeful advice for a very tired "normal" desperate grandmother at the end of her rope .One size fits
all, where I live in MS.
Hi Marsha :) I’m sorry to hear that you are having such a rough time of it. Have you been able to check your body temperatures? Low temperatures can explain the symptoms you’re describing, including the edema…even when blood tests are normal. I’ve seen patients able to cancel their Carpal Tunnel Surgery once their temperatures were normalized. The doctors we know that are treating WTS are listed here:
If there is not a doctor near you, just know that most of the doctors that are treating WTS heard about it through their patients:
If you find an open-minded physician, I’d be happy to talk with him/her personally on the phone for free to help them get started (doctor can call 800 420 5801 to make arrangements)
I’ve been trying so hard to drop some weight and eat healthy. It important because I am an amputee and it would make my life easier for walking. After joining Weight Watchers, I got so discouraged, week after week following the program and not losing. I went to the doctor and she is having me check my temperature. It has been between 96 and 97 all the time. My blood pressure has been very erratic as well. I didn’t see anyone say that. Is this part of this as well? Thank you.
My daughter is currently getting a second opinion from a ND for symptoms of:
Sudden massive weight gain
Fatigue-feeling tired all of the time
Cold hands and feet
Headache in back of neck
Joint pain-popping in and out
She is an athlete, but currently has not been feeling good. This has been building up through the years but has been getting worse; to the point where is just doesn’t feel like doing anything. She is an ice skater. She eats normal to even less amounts. It is frustrating for her because she has a future in the balance that she wants to continue but right now can’t because of the weight gain. Test from MD is normal. This is just weird and disheartning for her to say the least.
Yes, that does sound frustrating. Low temperatures could definitely explain these issues. Good luck to her.
Hi Dr. Wilson , I have a question for you . I was diagnosed with Hashimoto’s thyroiditis 3 years ago . I started taking 25mg of Synthroid and now I’m up to 75mg . My issue is that I have had on and off again swelling in my ankles and legs . I have read that that is a symptom of a thyroid disorder . Do I need to up my medicine to 88mg to see if that helps or do you have any other suggestions . I accidentally fell upon your website and it seems very informative so any feedback would be helpful and I would be grateful, I hate dealing with this . Thank you
Yes, low temperatures can explain your swelling. The job of the thyroid system is to help you maintain a normal temperature. If your temperature is low then that is an indication that your thyroid medicine may not be optimal, regardless of what your blood tests say. And increasing the Synthroid dose might not be the best solution. You may want to visit a doctor listed on list of Medical Providers for a second opinion.
I am near the end of my 2nd round of t3. first round i went up to 75 mcg 2nd round up to 90mcg. i noticed while i was tapering down i had more hair fall seem to be worse. Is this normal? If i am getting worse before better when do i expect an improvement. my dr. said it could be about 6 mos for full recovery since ive had this issue for 20 years or so. My major physical symptoms are dry and falling hair, also hair loss throughout body and cold hands and feet i am not overweight. typical temp is low 97s. On t3 in my second round temp avg. mid to high 97s and not so up and down like first round. assuming it doesnt jump around as much and future rounds? i have been great about taking med on time. also, my pulse has not moved much. i am typically pulse at 60-64, on t3 only the same or upper 60’s. is this ok? any suggestions u can give since my dr has only been doing this about 6 mos. any suggestions on how to dose or how long to keep me on a certain dose? and i can take suggestions to her. thanks youchristine
Hi Christine! I would be happy to discuss your case for free with your doctor. She can call 800 420 5801. Unfortunately, I can’t give medical advice over the internet. Best regards.
Hi Dr. Wilson, i’m from Israel and i’ve recently heard and read about your Temprature Syndrome.
For over than 19 months – after coming back from a 3-month-trip in South America – i have been suffering from various of sympthoms that haven’t been diagnosed properly by the doctors in Israel.
I had dozens of blood tests and other related tests – all seems to be fine and none had shown a specific desease yet. This has led doctors to release me over and over with “there’s nothing wrong with you”, or lately, “there might be a mental cause for this” (be sure that my mental health is more than o.k).
My sympthoms are: chronic fatigue during the day, muscle weakness, IBS (mostly constipation-based), weight lose disorder, center-chest aches, throat chokes, low sex drive, hair lose and stability problems.
Though not the main sympthom, i do also sense irregular coldness at my feet and carpals, and my temprature, as i checked for the last 2 weeks, is always around 36.5 C.
Do you think my case fits the charachteristics of WTS?
Thanks in advance!
Absolutely, WTS is compatible with your symptoms.
I have most of the symptoms and my temp ranges between 35.8 and 36.2. Could this be the right diagnosis?
Hi Dr. Wilson!
I’m glad I found your website. My normal body temp is 97.2. Lately out of the blue I get a headache and it feels like ice is running through my veins. When I take my temp it ranges between 95.7 to 96.9. When it gets to around 96.0 my speech gets impaired. My thyroid has been tested numerous times. I feel helpless
I’m sorry to hear that you’ve been having such a bad time. It is amazing how debilitating a low body temperature can be. Many people describe as a feeling of overwhelm, out of resources, helpless, at the end of their rope. It’s interesting how those feelings can go away as soon as the body temperature is normal, sometimes in a matter of days.
Hello Dr. Wilson,
I have been to at least seven doctors. My family has a history of 3 with hypothyroidism and 4 with Hashimotos including my brother. I finally found a holistic doctor who took me seriously. She has me on nature throid. I’ve been checked for Cushings also twice. Once with taking the Dex pill the night before and the other just a plain cortisol morning test. I’m negative for Cushings. My thyroid tests before taking taking nature throid were; TSH 3.68, Free T3 2.5, Free T4 0.89, and Reverse T3 18.4. I’ve been tested for antibodies four times and it comes out negative. I’ve even been tested for Hashis with interleukins blood tests and even an ultrasound (no findings). The reason why I’m so persistent on testing for Hashis is because I have almost all the symptoms. My symptoms are; 60 pounds weight gain, hair loss, major insomnia (difficulty falling asleep but once asleep can sleep 15 hours), major constipation once every 5-6 days, my hands and feet are so cold all the time, bad memory, headaches every morning, irregular mentrual, loss of libido, and my body aches and my muscles are tender to touch. I don’t have diabetes been tested four times. Two doctors said I have PCOS and prescribed me Metformin which I hardly ever take now. After taking the Nature Throid my new labs tests are; TSH 0.05 (so low it’s scary), Free T3 3.3, Free T4 1.24, and Reverse T3 17.7. Being worried about my very low TSH which my holistic doctor says not to worry, I went to see a new doctor last week. I showed him all my lab results and he says they are not bad enough for treatment. I just want to try and get synthroid or something other than Nature Throid. He told me to stop taking Nature Throid and in six weeks we will test for everything again. He is also going to have me do an anti-microsomal antibodies test. Is this test the same one as the thyroid peroxidase antibody test? If it is, I’ve done that test four times, and always negative? He made it sound like I’ve never been tested for the anti-microsomal one even after looking at all my labs. My questions for you are; What do you think about Nature Throid versus prescription thyroid meds? Since I have stopped Nature Throid for one week now I’m back to being cold and more constipated. While taking Nature Throid I would go to the restroom once every 3-4 days and felt a little better but noticed the pill would wear off in 8 hours taking 2 grains in the morning. I do know that Nature Throid is synthetic and from an animals thyroid and what I have read is that it gives you all the T hormones instead of the pharmacy ones only giving you T4. Is it worth it to continue fighting trying to get pharmacy thyroid meds? As an opinion what do you think about my lab results. I’ve read there are doctors who do treat people with a TSH at 2.0 or higher and don’t follow the range that the person needs to be over 5.0 and I have read that Clinical Endocronlogy Association changed the TSH standard at I think grounds for treatment at 3.0 or higher. I don’t know what to do anymore. I would so greatly appreciate a reply from you Dr. Wilson. Thank you very much.
Hi Katerina, the situation you describe is typical of Wilson’s Temperature Syndrome described on wilsonssyndrome.com. Nature-Throid is a prescription medicine that contains T4 and T3. People can have a low TSH levels and still have low body temperatures because they are not adequately converting T4 to T3. It is often necessary to use sustained-release T3 therapy without T4 in order to normalize body temperatures and resolve symptoms. Anti-microsomal antibodies are different that anti TPO antibodies but you don’t have to have Hashimoto’s to explain WTS. Many more people have simple WTS than have Hashimoto’s. I hope that helps :)
I have a lot of the symptoms. I have Bi-Polar disorder, arthritis, seems to be all over my body, Hypersomnolence, which is similar to Narcolepsy, Sleep Apnea, healed over ulcers, and a hernia in my esophagus. My temperature is generally 97.7. Last year I started on Armour for Hypothyroid and it has helped a little. Initially the change was dramatic but, seems to be wearing off or I am just used to it now. I am not as cold and have more energy. With the Bi-Polar disorder I have terrible memory issues, state dependent learning. I started taking a Dopamine supplement not recommended by my psychiatrist, but it is the best thing I have found to lessen the memory problems. Could regulating my temperature make things even better?
The fact that you had some improvements with the Armour in the beginning is a strong indication that you might benefit from proper thyroid hormone treatment that normalizes your body temperature. Sometimes, Armour Thyroid will improve body temperatures for a time but then the body temperatures can go back down again, typically after two or three months, because of impaired T4 to T3 conversion. Many patients in this situation benefit from normalizing their body temperature with T3 therapy. Best regards :)
Hi my body temp is ranging from 92 to 97 and yesterday in d evening it was 101. I take 50mg eltroxin a day and still it ranges. What explains this? Plus I feel horrible
I HAVE HAD UNUSUAL SPELLS OF FEELING EXTREMELY COLD INSIDE FOR NO APPARENT REASON. i AM SO COLD i FEEL LIKE i HAVE BEEN PACKED WITH SNOW. i STAY COLD FOR LONG PERIODS OF TIME AND CAN’T GO OUTSIDE IN COLD WEATHER BECAUSE THE VERY TOUCH OF WIND ON ME MAKE THE FEELING OF COLD EVEN WORSE. i AS MY dR AND HE HAD NO IDEA. hE DIDN’T TEST ME FOR ANYTHING. i GENERALLY TURN UP THE HEAT WHICH SHOULDN’T NEED TO HAPPEN BECAUSE I FEEL THIS WAY DURING ANY SEASON OF THE YEAR. iT CA BE 98 GEGREES OUT AND i AM FREEZING. eVEN MY HANDS ARE COLD.
i WAS DIAGNOSED LONG TIME AGO WITH HEART MURMUR AND THEN LATER TRICUSPID VALVE (CAN NEVER REMEMBER WHICH-PROLAPSE OR REGURGITATION). tHE Dr said I could live to be 100 but never said what to do. I am not diabetic. But I fall aslepp easily after eating and miss all kinds of tv shows or events because I dozed off and didn’t intend to. Sometimes I just blink and wake up later. I have been diadnosed with sleep apnea tho.
So what ever you can tell mewill be appreciated.
Hi Linda :) Low temperatures can certainly contribute to such symptoms. Best :)
I’ve struggled with weight my whole life, and although I’ve found some relief with a low-carb diet, I still have to constantly struggle with it. I started measuring my body temperature for these last two weeks, and have averaged around 97.3F during the day. I decided to get a thyroid blood work-up done, and here were the results.
TSH 2.8 Lab range (0.5 – 3.0)
Free T4 1.9 Lab range (0.7 – 2.5)
Free T3 2.8 Lab range (2.5 – 6.5)
TPO 12 Lab range (0-150)
The lab comments said, together with symptoms, point to hypometabolism/sub clinical hypothyroidism. Looking at the data, it looks like my TSH is high-normal, and my T3 is low-normal, even though T4 looks ok.
I’ve had my thyroid checked for other reasons and it the results were normal. However, I am often really, really tired even when I have a pretty good sleep schedule and I often feel like I’m having hot flashes; I’m only 22. I also exhibit the following symptoms listed above: depression and anxiety, cold intolerance, sweating abnormalities, acne and occasional ringing of the ears. The thing that most concerns me is my body temperature. I’ve always had a lower body temperature ranging from 96.9-97-4. And whenever I’m sick (which i currently am) I can always tell I have a fever…I’m achy, I shiver, I’m weak and I have light sensitivity. Even though I feel very feverish, my temperature only reads 98.9. I’ve tried 3 different thermometers with all the same result. Could this be cause to talk to my doctor about Wilson’s Temperature Syndrome?
For sure :)
I have been hypo for 15 years, in the last 10, I cannot seem to cool down, I am hot when it is 70 degrees. Hot when I wake up in the AM. Menopause is over for about 5 years now no flashes for the past 4 years. I am on Armour and liothronine. I hate being hot all of the time, any chance of adjusting my meds in a way that would help? Test results TSH low, T4 low, T3 a higher normal.
Yes, people with low temperatures can feel hot all the time. Their low temperatures can often be corrected, and their symptoms can go away. All this can happen even when TSH is low and T4 is low and T3 is high. You can see wilsonssyndrome.com for more information on measuring temperatures and treatment.
I am a chronic migraine suffer who in the past month or so has been very fatigued and has been gaining weight fast. I’m working out more than ever because of the weight gain and the weight is still coming on when it should be coming off. I’m having some emotional issues like if I was PMSing all the time. I also have 11 nodules on my thyroid (just found with US). I’m 45. My average body temperature is 97.7. I had my TSH tested and it is within the normal limits.They are sending me to an endocrinologist. I do have dry skin and some of the other symptoms. What do you recommend that I ask the endo? Is 97.7 considered a low temperature? I’m trying to find answers as I am feeling miserable.
Hi Kathi, your story is classic for low body temperature and Wilson’s Syndrome. Your endocrinologist may not know about it, agree with it, or know how to treat it. I would be happy to discuss it with your endocrinologist for free (s/he can call 800 420 5801). Or, you can go to a doctor on the list of medical providers on wilsonssyndrome.com
Since I have had low thyroid symptoms for 20plus years. Should I expect to be on t3 protocol for 6 mos to a year? I guess the question is when do I know it is not working for me? If I’m not seeing any improvement in temp?
I have Graves Disease and was given radioactive iodine. Does that kill the entire thryoid? I was given Synthroid by my specialist, but now my family physician gives me Levothyroxin 100mcg. I have been loosing hair rapidly and have dry skin and brittle nails.Is there a big difference between the two medications? I have been thinking about asking to try the Synthroid again.
Levothyroxine is the generic name for T4, Synthroid is a brand name for T4. If you can get a normal temperature taking either of them then that would be a good sign. However, as long as you have a low temperature then that could explain symptoms even if your blood tests are normal.
I’m a 14 year old male and I’ve been experiencing low temps, trouble focusing, and headaches for the past few days now. I have had an ultrasound on my thyroid before but only very small nodules were discovered. My blood tests have also all come back normal. Do you think this could hint at Wilson’s Syndrome even though I’m only a teenager?
Absolutely Nick, especially if you have ancestors that survived famine and if you are under a lot of physical, mental, or emotional stress. Good for you for researching for solutions for your problems.
I have nodules on my Thyroid. They were biopsied lasy yr. Were ok. 2 months ago started having low grade fever & rapid heartbeat. Started getting severe skin burning 6 wks ago. Went to Dr and neurologist. Said I have CMV virus which led to Transverse Myalitis. (no tests were done to confirm this). I have been looking more into the Thyroid because I seem to look like that picture. Still have the rapid heartbeat. Other symptoms are red eyes, dry hair, cold clammy hands sometimes, peeling skin on feet (and I never have any problems on feet), occasional shaking and trembling. Lately I have noticed when I get up my temp seems to be low (96-97) and I get very clamy. When the burning ramps up I sometimes get a swollen red ring around thyroid. The burning is very bad and seems to start in upper back, radiate around my chest. Also other places. Does burning sensation happen this bad with Thyroid?
Hi Tammy :), Burning sensation of the skin is not a symptom that I’ve heard people complain of due to a low temperature. However, low temps can cause fluid retention and that can contribute to nerve pain and problems. I recommend that you check your temperature when your burning is the worst and check it when your burning the best. That way, you’ll be able to see if there’s a correlation between the burning and your temperature.
Good evening, I have just about every symptom on your chart listed however I have never kept track of my temp, but will from today forward. How ever I am going to be asking about my husband, in 2010 he was diagnosed with papillary thyroid carcinoma. He had thyroid removed with neck dissection, did the iodine radiation therapy and was later put on synthroid and takes the generic Levothyroxin 150mg , However he has a lot of the symptoms also on the list, after not feeling well a few times in the past i can recall his temp also being low , but we haven’t kept a record of temps (will do after today) with him not having a thyroid anymore could he be a candidate for WTS?
He may have a problem with converting T4- please see the latest blog on wilsonsyndrome.com about the genetic mutation. Then take that information to your physician and ask about trying T3 instead. Good luck!
I have almost all of the above symptoms and my temp stays around 96/97 but tonight its 95.1 under arm no degree added and I’m really sick cold chills sore throat headache sinus thing. I was going to ask why my temp was so low and if that’s OK pros cond exc. But I was reading a bit about taking t3 and it should help well I currently take nature thyroid a t3/t4 med so what can I do? I do have hypothyroidism
You could go to a doctor from our “list of medical providers” on wilsonssyndrome.com and the doctor could help you with your thyroid treatment. Possibly, switching you off Naturethroid and putting you on straight t3.
Hello…. at wit’s end… Had triple parathyroidectomy February of 2014. All issues associated with hyperparathyroidism are gone. Now , I have a whole new set of problems. Tingling hands, arms and face. Burning/dry eyes. Tongue feels large with a re-occuring canker sore on the left side. Constant low temperature between 96.5 to 97.7. Light brown mucous in the morning. Scratchy/hoarse throat. Gaining weight like crazy the past month. Face looks pale and puffy. Sharp pain in lower back, just above hip and goes through to front, constipation. Wake up in the morning feeling like I just come back from the dead with blurry vision and dizzy feeling. My Doctor swears I have anxiety and depression. Now has me on sixth SSRI, Currently Seroquel and Fluvoximine. I tell him that my issues are physical. Sometimes I feel like I get the instant flu, like something is poisoning me. All blood tests are normal, except Triglycerides are high now matter how much I try to control them…… Somebody please help! I feel like I’m going to go nuts! In counciling for that as well. I think I may still have thyroid issue or adrenal issue….. Something Endocrine that they are not seeing? I remember what feeling normal is like….. this ain’t it! Please help me. And, If doctors need to look for something, how do I get them to get me to the right place? Ive been to ENT, Endocrinologist, Cardiologist and my Doc. Have Nuerologist appt. in April??????
One good thing you could do is to check your body temperature. Low body temperatures can be caused by the stress of illness or surgery and can explain the symptoms you’re having. It would be great if your symptoms were being caused by a low body temperature because a low body temperature is reversible. You can look for a doctor listed on the “list of Medical providers” at wilsonssyndrome.com
I am 57 years old, 5 years post meno,5’1″, 122 pounds.
I recently went to an integrated endocrinologist to check for thyroid issues because I have many symptoms.
I have tracked basal temperature and it averages 97.6. I have good blood pressure,and 57 bpm heart rate ( i am athletic) I weight train 5 times per week and perform some type of cardio for 45 minutesc4 times per week.
I was putting up withall of my symptoms until my weight stalled and then started to climb eventhough i have reduced my intake to around 1000 calories per day.
The doctor had me do a nightime salivary cortisol test as she seemed to think that had more to do with my symptoms.
The test was done on 2 consecutive nights, a few hours after my usual bedtime. The first night’s test was normal but the 2nd nights test was .509 which im told is very high.
My thyroid tests all came back normal as did a comp. metabolic panel and vitamin d test.
Now she wants me to do the 24 hour free urine test and the dexamethasone test.
I again mentioned by low basal temperature, but she did not really respond to that.
I think she wants to check for cushings disease because of the one abnormal cortisol reading.
I am kind of perplexed over this.
I did not think i had cushings symptoms so im looking to you for a little advice about Wilson’s.
Reversible low temperatures are certainly more common than Cushing’s Syndrome. Low temps can explain weight gain. Sometimes excess exercise can be interpreted as stress by the body. Just some thoughts.
my body temperature used to be normal at 98.7 but for the last two years I’ve been having problems with a low body temperature and I can feel when it’s low and sometimes I even have to go home from work because it is low and I am feeling bad. Doctor checked my thyroid and says its normal. I noticed that when I am stressed my temp drops. It’s been 95.6 to 96.7 at times. I don’t really know where to go from here. I tried antidepressants but found I could take them as they caused me further problems. I don’t really know what else to do. Any suggestions?
Hi Mary, This sounds very typical of WTS described on our website. You might consider visiting a doctor on our list of practitioners at wilsonssyndrome.com Or I can speak to your current doctor for free (Doc can call 800 420 5801 to make arrangements).
Hi Dr. Wilson,
I have this low temperature problem with anxiety when my free T3 drops. My thyroid tests used to be in the normal range with low free T3 but now after 10 years indicate pituitary failure or TSH deficiency. Could this syndrome have an association with inability for TSH to rise appropriately?
Hi Shannon, I’m not sure about that. I’ve never run into a case where I noticed that was happening. Most people with low temperatures and low TSH respond well to T3 therapy and their symptoms often remain improve even after the T3 has been discontinued. Low TSH is usually due to overactive thyroid. People with overactive thyroid can still have low temperatures and WTS as well.
Hi Dr Wilson, my normal body temperature is 36.5 but I’ve known it at 36.2/36.1 at the moment I’m suffering with gallbladder trouble and waiting for an operation so maybe that’s why it’s a little higher than normal.
My hands, fingers and feet are regularly cold and cannot get them warm without getting into the bath to warm myself through.
Most nights I sleep with a thick dressing gown on and wake in the night very hot. I have told my fiancé I fel as if my body has no thermostat. I’m either too hot or too cold.
Hi DR Wilson, I am the same person as the comment above. I my body also swells up when I holiday abroad and I can put on half a stone just in fluid then my body cools down when I come home.
I live in the UK can my doctors help me?
My daughter is 15 and having all kinds of tests done and nothing comes back…Her feet and hands get freezing cold and it travels up her legs they also go numb..Just finished test for Raynaunds but I don’t think that’s it …so I’m at a loss ..She went hunting and found this so idk if this is what we should be look at next ..I just know she’s miserable .
If your daughter’s body temperature runs low on average then I’d say it’s quite possible that that could be contributing to her symptoms. Raynaud’s can be due to several causes. Some people diagnosed with Raynaud’s recover when their temperatures are normalized.
On occasion I have wakened in the morning to swelling in my face. I have an under active thyroid and take a daily dose of 150mg thyroxine. Lately I have symptoms of unusual leg cramps where I feel tissue within the muscle cramp up but not the full muscle. My hair is thinning, I also have joint pain caused by psoratic arthritis and in the evening I experience a burning sensation on my skin of the left tricep. I do exercise but my body weight is a problem and I am several stone overweight. I came across your site and reading through the information and comments from others with similar conditions I need to investigate treatment. What would you suggest? I have now taken my temperature and it is 36c, I will continue to monitor it and take it from there. Thank you for the information on your site.
This section of the website will give you some direction with regard to treatment: http://www.wilsonssyndrome.com/restore/fixing-the-problems/
I am struggling with temperature issues. TSH normal. I get chills and if I get too cold I have to warm up with a hot bath. Most of the time my nose hands feet remain cold. My intolerance to temperature change is so severe I can tell the difference if it moves up or down 1 degree. I am 59 and post menopausal due to early hysterectomy in my forties. I am tired all the time, low metabolism and weight gain with diets not working. In fact I hardly eat anything but still put on 15 pounds over 2 years. The random chills are new. I have them sometimes in the afternoon, after a nap, or early morning .
I am 28 years old, I have always run a low temperature usually 96.7/97.1 I just thought that it was normal for me bc no one has ever been concerned about this… I have had really bad anxiety since I was 14 and on meds for this but recently I decided to look around for some radios that I am always cold. In the summer I just can not get into a pool because I cant get used to the water. When I get out of the shower it actually hurts bc the air is so cold it takes me about an hour to start feeling better. I never knew there could bee medical reasons for this so never mentioned it to my doctor before, after reading a bunch off stories I found a lot of people that suffer from this also have anxiety and dry skin, which I also have (eczema). I have always had issues with eating bc if I eat normal three meals a day I can’t seem to lose weight no matter how much I exercise. I’m starting to wonder if this could be a thyroid problem?
Yes Rebecca, a low temperature can explain those symptoms and can be reversible. By far, most people with low temperatures that are causing them symptoms have normal thyroid blood tests. However, the temperatures can usually be normalized, reversing the symptoms.
The symptoms are all very familiar to mine indeed! I how ever was diagnosed over 20 years ago with 2dary progressive MS… by MRI… No fun! Could I have been incorrectly diagnosed….
othres cause of hypothermia ?
OMG OMG, I have burst into tears! My mom found this after 3yrs+ of torturous hell that iv been living this is by FAR the most symptoms I have matched to anything iv searched on the web & believe me iv been living on the net trying to find an answer! After threatening my Dr. with leaving his practice & getting another set of eyes on my files he finally booked me an hour appt & researched my file. Telling me my first stop would be a gyno as iv had 2 periods in 2 1/2yrs & being only 34yrs old. But the most horrible symptom of all is the hot/cold I’ve been dealing with, so cold it feels like my bones r made if ice that even under 5blankets in a sweat suit I have goosebumps so long they hurt, evvvveryday & so hot I am gonna combust into flames! Yet every blood test (all 15) in the past few yes is completely normal! So all my Dr has done is treat the symptoms, & have found during the time I’m taking them the symptoms subside with antibiotics, quetiapine & opiates. But obviously no long term success :(. Whatever’s going on my life has been ruined as a single mother of 3 kids I made the sound decision that if theres not diagnoses that can b made (my Dr asked the “what if” question) as I’m not just absent from theyr lives (frustratingly living in my bed under 5 comforters) that I’m an actual HINDRANCE my 15yr old has to raise his brothers & take care of me. I cannot continue to b of this planet, like I said not only absent but a complete drag on my family, but a drag that has a torturous existence :'(
Hi. Was interested in your article. I am 34 and have had many of the symptoms mentioned here for years. Some of the symptoms are similar to having excess Candida. I tried the Candida diet and while I lost weight my temperature was still low, my heart rate was still low and the fatigue didn’t go away. I fainted at work from my blood pressure suddenly dropping. At the ER the EKG came back normal. The blood test came back normal (iron level vitamin D and some others the doctor asked for). They told me my blood pressure and heart rate were low but was normal because I’m so healthy and I should be glad its so good. And I should eat more salt. I don’t sweat so if I get hot I get overheated easily. I don’t see how salt would help though Gatorade once a week has helped dizziness. My temperature today is 97.2 and heart rate 56. Are the supplements suggested here like vitamins and if I take them and don’t need them they’ll just be eliminated? I just don’t want to get I worse. I will of course speak to a doctor but with over 20 of the symptoms mentioned above I want to try. So basically are there any negative side effects? Or if this doesn’t work will it make matters worse?
Every medical treatment has potential side effects, but usually T3 therapy doesn’t make matters worse.
Hello Dr. Wilson
I have also cold hands but my upper body temperature is always and cause my sweating all the time.I’ve made blood test for thyroid glen and it came that is normal. Any suggestion?
Yes, people with low temps can have sweating abnormalities. So yes, your hands could be cold while your chest is sweating…and that could be normalized with normalizing the temperature, possibly.
ThyroCare is safe to take with levothyroxine. I’m not familiar with Thyroid Advantage. Your doctor can order T3 for you through medaus.com. A recent study suggests that increasing temperature to normal with treatment might be a good goal in the treatment of obesity..
For the last 2 years I have been having issues with feeling freezing cold even when it’s warm. I have goosebumps when everyone else around me tells me it’s not cold. Because of this I feel like I’m constantly tense which I think is causing me various other health problems such as muscle aches, headaches and sciatica. I thought this must have been a thyroid problem as my mom has low thyroid function but my tests were normal. I have had loads of different blood tests because I feel so run down all of the time but everything comes back fine. I feel like doctors must think I’m making it up. I went through a very stressed and anxious time around the onset of these symptoms, and got myself into a vicious circle of worrying that something was wrong with me and getting symptoms because of the stress. I feel a lot better now and am not as stressed but I still can’t get warm! I have recently been on holiday to Florida and felt better than I have done in ages because of the warm weather until we went into air conditioned restaurants! Everyone in my family welcomed the cool air but I was so uncomfortable. Back home in the UK I’m so cold again but the weather is mild. What can I do? Are there any supplements I can take for this?
As you know, stress can bring on low temperatures and low temperatures can cause someone to feel cold all the time. Sometimes diet and exercise and nutrition can help the body recover on its own, however, in other cases T3 therapy is needed. Best :)
I recently discovered that I am suffering from Wilson Syndrome. I have wondered all these years what was wrong with me! Doctors were unable to find anything, but I knew there was something. After completing the checklist, I realized these are the exact symptoms I suffer from. Can I just order the T3 or do I need to have my doctor order it? They already think I am a hypochondriac along with everyone else. In fact I am running a temperature of 97.1 right now.
Hi Lesley :) T3 is a prescription medicine. You can check here for a doctor close to you: http://www.wilsonssyndrome.com/patients/medical-providers/
Hello dr. Wilson. About 2 years ago my girlfriend started having chinsplints an within a week or so her central vision went an she lost her licence shortly after she started having burning and noticable swelling in both feet, her legs from the knee down go bright red an the feet go purple as if there were a circulation problem an i can literally watch them swell this happens worse in the morning and at night with up to 6-7 flare ups during the day, it is extremely painful to the point that she no longer leaves the house except for dr appointments an needs a wheelchair to get around, walkin is torture. We’ve been to neurologists rheumatologist a few other specialists with no answers aswell one visit with a dr from IDC who said it was a vitamin B deficiency. Nothing has worked. After reading the signs an symtoms for wilsons i noticed she had almost all of them.how can i get her tested an do you think it from what I’ve described that this would b sn effective treatment for her?
Hi Mike! It’s easy for you to test her for Wilson’s Temperature Syndrome. All you need to do is to get a thermometer and measure her temperature. http://www.wilsonssyndrome.com/identify/how-are-body-temperatures-measured/
If her symptoms seem to come on or worsen at times of stress then that is particularly typical of WTS.
Good luck to you :)
Just wondering can this be the case if you suffer from a number of those symptoms but constantly run a fever from 37.3 to 37.9
Hi Carzo, The symptoms are due to abnormal temperature. And yes, a mild fever could explain similar symptoms. If your temp is 37.3-37.9 it either means that your thermometer is inaccurate (can check it with another thermometer or two), or that you have a mild fever that may be due to a chronic infection.
Dear Dr., My 43yr old, very fit & healthy husband was found to have normal-low thyroid (during routine physical at his job site). At the time he was suffering from odd symptoms that our family Dr. couldn’t explain, such as, feeling cold all the time (normally he’s like a furnace), low sex drive (so not normal for him), fatigue (normally can work from dawn to dusk & still fit in a work out), hard time keeping weight on, stomach cramps, & itchy skin. Our family Dr re-checked his thyroid levels & said the 2nd set was “good”. Our Dr then diagnosed him as having Depression & prescribed antidepressant meds. The meds didn’t work. Symptoms still persist. Still believing that the thyroid is the issue, my husband experimented 4 months ago with a natural supplement called Thyro.Support for 2 months…..felt way better! Then went off & symptoms came back. Our family Dr dismissed it, said his thyroid blood tests are “good”, no need for thyroid support. Any advice? Thank you kindly,
Hi Maria! Thyroid blood tests aren’t going to be a good measure of your husband’s metabolism because thyroid blood tests don’t measure body temperature. The purpose of the thyroid system is to maintain a normal temperature (98.6 on average measured by mouth). Low temps explain symptoms, normalizing the temps often correct the symptoms. Best :)
Hello Dr wilson, I have just come across this site it feels like i have been living in a nightmare im 28 and from the uk and in the past 16months ive experienced Loss of energy, Don’t feel like doing much, Tired all the time. Chronic fatigue.
Just don’t feel well; don’t quite feel normal, Hard to explain its like I’m in a daze.
Feel old. Don’t have the interest in the things that I used to do because I have no energy.
Can’t concentrate, or can’t keep your concentration like in the past (brain fog)
Bones and muscles hurt; mostly in the legs and in my back.
Dry eyes, blurred vision and my eyes are swollen in the mornings
I’m always cold even in the summer but have night sweats
Don’t sleep like I used to, Wake up in middle of night, Trouble getting to sleep
Tired during the day and frequently feel like I want a nap (but naps don’t help)
Forget simple things that I used to remember very easily (worsening memory)
Decrease in sex drive
Croaky voice sometimes can’t even hardly talk
My hair has no life its thinning and falling out
Water infections at least once a month.
I look different and washed out all the time
Pins and needles in my hands and feet sometimes the tips of my toes are numb for several days.
Tingles in my face
Some days I can’t even get out of bed because I feel exhausted.
Ive had numerous blood tests to be told everything is normal i know there is something wrong and im convinved something is wrong with my thyroid, i have started to take my temp and its never no higher then 34.
I have always been fit and healthy I’ve never had problems until over a year ago I started with these symptoms.
I do not have depression my life is good and I want to do things with my life but living with this is stopping me which is leading me to feel depressed.
Thyroid blood tests don’t measure body temperature so they can’t tell you the condition of your metabolism. Your low temperature can explain the symptoms and if you can get your temperature normalized there’s a good chance you’ll feel much better. I can discuss your case with your doctor for free or you can try some of the suggestions here: wilsonssyndrome.com
Just wanted to say thank you. As many others have commented on here, I wasn’t aware that a lot of symptoms I’ve been experiencing on and off (although more recently on) for many years, were an actual cause for low body temperature. I only started looking on this as had yet another bad turn the other night with passing out twice due to extreme body temperature. Apparently when I do pass out, my eyes roll and I go rigid. I had this about 18 months ago and a lot of tests, ecg’s, heart monitors etc. aswell as lots of blood tests and all found nothing. I have been told that I have low blood pressure, which I had always thought was a good thing! I am due to see my Dr next week when she gets results of all my previous tests and can let her know about the possibility of my having Wilsons Temperature syndrome. It would be nice, not to have to be hot, cold, hot cold all day and all night long! Even if it isn’t the cause of my problem, it was a welcome relief to know that others around are experiencing similar and some of you, so much worse, I do empathise and hope we can all feel better soon with a positive attitude to life. Again many thanks for giving me some hope.
Dear Dr Wilson,
I have extremely intolerant to cold. Even a slight decrease in temperature causes nasal congestion, secretion, sore throat and cough problems. I it due to T3. My combined TSH level are normal. All other blood tests are normal.
Hi Pradeep :)
Low temperatures can cause symptoms even when thyroid blood tests are normal….even when T3 blood tests are normal.
It means the cause of my problem is low metabolic rates which is not being caused by thyroid but due to some other reason. Is there any way to diagnose it?
Thank you for your reply ~ best regards, maria
I already have an underactive thyroid condition for which i take 150 mcg of levothyroxine daily but very recently ive been experiencing exceptionally cold hands & feet & nose !! But last night i was freezing all over and it took hours for my body to warm up,should i be concerned ?
I don’t know how you would define “concerned”. However, it’s possible to have low temperatures even though you are on 150 mcg of levothyroxine and that would be plenty to explain severe symptoms. Many times low temperatures can be easily normalized with proper treatment.
Hi Dr Wilson
Can you please let me know how I can purchase the WTS meds? I am in the UK and cannot find any sites that ship here.
Kind Regards Ann
Yes, please call 802 262 6100 ext. 201 in the USA and they can help you. Best :)
I’m hyperthyroid on PTU and propranolol. Every time i get my thyroid panel done my levels are normal but I am allergic to more or less everything now and keep getting bouts of hypothermia with very high bp, shivers, numbness. What’s causing this. Cortisol levels show adrenal maladaption.
Hi Jeanette, I can’t say for sure what is causing your symptoms. However, if you have low body temperatures that could explain some of your symptoms. It’s possible to have hyperthyroidism (excess thyroid hormone production) and Wilson’s Temperature Syndrome (inadequate thyroid hormone conversion and expression with low body temperatures) at the same time.
my wife feel pains all over her body and her body to is tooo hot the same to my daughter so I will b happy if u show me so medicine
Hi Adamu :),
If your body temperatures are low you can find some ideas on how to raise it at wilsonssyndrome.com. I can’t give specific medical advice over the internet.
My temp. Has been consistently 92° for Two months now, doctor says don’t worry it’s not my CORE temp, and I look fine. Unfortunately over one half the symptoms apply. My doctor says extremities can run cold. Where do I send for more info?
Wilsonssyndrome.com has a lot of free information (even a free patient book and a free doctor’s manual). Alternatively, you could show your doctors my new book, “Evidence-based Approach to Restoring Thyroid Health”.
Hi Dr Wilson,
My chiropractor told me to check out your site. He mentioned the converting issue from T4 to T3. I was just diagnosed with fibromyalgia, but I am not sure I agree. I have so many of the symptoms listed on your site. I am also the parent of a child with severe autism and often under a downright inhumane level of stress. I felt the specialist I saw just quickly slapped me with the fibromyalgia diagnosis without really listening to me. He only did a TSH on labs, and it was 1.9. I am seeing a new primary doctor in July that is an osteopath with a strong interest in integrative medicine, so I am hoping she is open to this. The first question that seems to come up when I mention this to anyone is “how do we know this is real” because many seemingly well respected sites are calling your work “unverified” and “not an accepted diagnosis”. What research can I review or point to on this? It makes total sense to me, but convincing others is often slow when it comes to integrated approaches. Thanks!
Good news :)
The diagnoses of Fibromyalgia and Wilson’s Temperature Syndrome are not mutually exclusive. Also, available on wilsonssyndrome.com is my new book, “Evidence-based Approach to Restoring Thyroid Health”. In that book, you’ll find over 800 scientific references supporting all we do.
Hi Dr. I have nausea and feeling sick and week for 6 month. All my test came back normal, except my ttyroid he said a bit low. He did not give me medication. Went to see 3 natural path doctors, not to much luck with them. Steel nausea and week and lost about 26 lbs. I’m now only 104 lbs. last week I went to see iridologist and she put me right away on digestion enzyme minerals and she told me to check my temperature every morning . Is very low only 36c. She thinks is a thyroid problem. I’m 54 years old and steel have my period regularly. My biggest concern the nausea and not able to eat, feeling week all the time. What do yo think?
Looking forward to hear from you.
Fatigue is a common symptom of low body temperature. Low temperatures can contribute to constipation but nausea is not a common symptom of low body temperature, but who knows, maybe it is contributing in your case.
Hi, O boy I have stories to tell you, But iLL keep it short and well not very sweet. I am Hypo, And at first i was hyper, then went to hypo.I have been suffering from this for 26 yrs, I do take levothyroxine, But still don’t feel up to par.But all my dr. tells me is your fine.Do you know really what i feel like telling him,but it’s not very nice.sry.So still every day is a struggle.I try to keep it together,with the help of my wonderful husband who has been by my side every inch of my struggles.My body aches every day, and cry a lot.I don’t know what to do anymore to get the right kind of treatment,I have done so many diet changes to see if they would work cause tired of gaining the weight. And that didn’t work. And as exercising well forget that.Well anyway’s thanx for your site, and for listening.
Thank God for your site. My body temperature is always normal 36 degrees centigrade but my two hand gets very hot each time i move into the sun upto 49 degrees centigrade. what could be the possible cause
That’s really hot for your hands. I can’t imagine what would make your hands that hot. Do you really mean 49 degrees centigrade? 120 degrees Fahrenheit?
I have had thyroidoctomy in 1996 and my body temp is low that my spouse complain. I noticed I don’t secrete vaginal lubrication also. I am 40. What should I do.
A low body temperature can explain a lot of symptoms. Temperature is one of 4 vital signs, blood pressure, heart rate, body temperature, and respiratory rate. Temperature is vital because it’s important. Go to wilsonssyndrome.com and find suggestions for getting your body temperature up and when your temperature is normal you will be able to see what symptoms resolve and which are left.
Dear Dr. I have Hashimoto’s for many years. The doctors have left me without levothyroxine when it was diagnosed. Now I’m taking Euthyrox for 7 years. My last dose is 100 mcg per day.
First 2-3 years, my Hashimoto’s symptoms revealed, but years after I have them in different form. I am very tired again, lack of energy, I can’t wake-up in the mornings and it is very difficult to loose weight (I’m not fat, but I’m on healthy food for years)
Doctors are blind on my questions, why I am so sleepy. I just can lay down my head and fall asleep for hours.
Please can you advice me
Hi Iva :)
Euthyrox is a brand-name of levothyroxine. If your temperatures are low, that could explain your symptoms, even if your thyroid tests are normal. If that’s the case, here are some ideas your doctor could consider: http://www.wilsonssyndrome.com/emanual/chapters/t3-therapy-in-hypothyroid-patients-euthyroid-patients-presenting-on-t4-containing-medicine/
I have most of the symptoms above (achiness, flu like symptoms, joint and muscle pains, swollen feet, blurred vision, feeling very cold always, very painful periods, itchiness, trouble concentrating, rash, irritability, fibromyalgia, gained 40lbs) but I have a temperature of about 99.8. Blood tests always come back normal, exept it shows slight inflammation. Doctors are not sure of what I have. Think it might be rheumatoid arthritis or sarcoidosis although my blood tests are never conclusive. Please do you have any suggestions? I have had these issues for years and they are getting worse. I am on methotrexate now and still have a lot of pain and a hard time walking. I am 33. Could it be my thyroid (although blood tests are normal)? Please any tips, suggestions, referrals are welcome. Thank you much
Hi ASis, I would suggest you try taking your temperature with a different thermometer. It may be the one you’re using is not accurate. I’m sure you know this, but it’s important to “shake down” the liquid metal in the thermometer before you use it (so it’s reading something like 96). I don’t recommend using a digital thermometer.
Dear Dr, Im 27 and i live in the uk..!! These are my symptoms ive had for nearly 2 years and my gp just keeps telling me my blood tests are normal but i dont feel normal these are my symptoms.
Loss of energy, Don’t feel like doing much, Tired all the time, Chronic fatigue,
Just don’t feel well; don’t quite feel normal. Hard to explain its like I’m in a daze.
Feel old, Don’t have the interest in the things that i used to do because I have no energy.
Can’t concentrate, or i can’t keep my concentration like in the past.
Bones and muscles hurt; typically in the legs and in my back but can be most places.
Get extreme dry eyes, blurred vision.
Tired during the day and frequently feel like i want a nap (but naps don’t help).
Forget simple things that i used to remember very easily (worsening memory).
My hair has no life its thinning and falling out.
My skin gets very dry specially on my legs.
I look different and washed out all the time.
Im always cold sometimes i get that cold my lips go blue, i take my temperature several times a day and the lowest ive been is 33.3C and the highest was 35C and i was having a good day.
When I’m at my worse I get tingles in my face, feet and hands, I’m in a lot of pain with my bones, don’t feel well and I can’t get out of bed as I feel exhausted.
I have always been fit and healthy ive never had problems until over a year ago I started with these symptoms.
I do not have depression my life is good and I want to do things with my life but living with this is stopping me which is leading me to have depression.
Please help as i feel like im loosing my life :(
Hello, Im a girl of 26 years old. I have wondered the past few years if i had something wrong with my thyroid. I have had severe anxiety/low selfesteem due to a bad experience. I have been shy in the past, but never had anxiety. Also i suffer from hairloss, which a specialist diagnosed with male pattern baldness.
Anyway i finished my Education and have been unemployed since 2012. I moved to a new place in 2013 and my hair started to change, became dry and brittle. My face looked as if it was swollen (very round) but my body looked normal slim, so it wasnt weight gain. I didnt took any medications or anything. It went on for all the time i lived there 1 and a half year. I suffered for light anxiety, had dry brittle hair that looked frizzy, and i noticed when i did light excercise i got so hot and sweaty. Just walking was exausting for me. I would get home all wet of sweat from just a walk. Not something i had problems with in the past. Also i suffered from dry hot feeling in my throat and muscles aches, particular in shoulder neck area. After a year and a half i moved in my own apartment, living by myself. Interestningly, the dry hair went away, and became normal and shiny. Still thin though. I do use minoxidil for my hairloss. Also the faceswelling went away, and i looked more normal again. My nails and skin are okay too. But the most noticable thing is the fact my hair looks healthier and the swelling went away. Anyway i have had tests done for my thyroid a couple of times, back then, and now. They always comes back normal even back then. Today im on anxiety medication which does help. Ive gained a lot of weight since i moved to my own place, but the pills im taking (sertraline) is not suppost to interfer with weight. I have had bad food habits, such as comfort eating, so i dont believe the weight gain could be due to the medication or thyroid. However i have starting feeling very fatique. I can sleep for more than an hour during the day, i feel demotivated, no energy at all. I still get sore joints, my eyes feel heavy, so i need to close them, and then fall asleep. I still have a dry hot sensation in my throat. My Tonsils looked enlarged and i look overall swollen under my chin. When i touch and push a bit on my tonsils they hurt a bit. I have been checked for enlarged tonsils, but they say it looks normal and not enlarged, my throat was checked too, and they didnt find anything. My blood test has always come back normal. So basically the symptoms i have now is: Fatigue, tiredness, sore joints, swollen on my neck under chin, feeling demotivated, slight anxiety, sweating like crazy. Just Washing the dishes makes me tired and hot (sweating) Today i have been freezing all day, and could not go out of bed because i froze so much even with lots of clothes on. I slept with clothes and socks during the night. Im not sure if its related to hormones or thyroid (wilsons) I live in Denmark and its been windy and cold today on a summer day. So not sure if its really because of the weather. I never used to feel hot or cold like this. Other than the Fatigue and feeling hot and cold, my appreance look normal. Do you think i could have thyroid problems and specifically Wilsons? Thanks in advance
For sure I think you could have low temperatures and the associated symptoms. It would be great for you to check your temperature. A low temperature could explain a lot of your symptoms. Low temps can be caused by hypothyroidism or WTS. Sometimes, our mindset can impact how we deal with stress. There are some good books on the subject, such as “Mindset” by Carol Dweck, and, “The Untethered Soul” by Michael Singer.
Jenny from the UK Scotland. Welll I went to my GP and took along info from this site. She had my bloods tested and T3,T4 within the parameters. She did refer me to the specialist at the Endocrine clinic. He phoohood the info as he had never heard of Wilson’s Temperature Syndrome. I am certain It exists but being dismissed by specialists is very disheartenkng. I don’t know where to go from here. I have an under active thyroid, I am prescribed 150mg per day. I am over weight, have strange cramps all over mostly in my legs, my face puffs up periodically, I have joint pain psoratic arthritis, hair thinning, tired, irritable.. I monitored my body temperature over 2 weeks 3 times daily and it ranged from 33.5 – 36.2 with an average of 35.7. I left some info with the specialist that I had printed from your site in the hope that he can take the time to look into it further but without there help I at a loss. So disheartened now. I am certain you are right Dr Wilson.
Dr Wilson- I’ve got a couple of things going on, kind of complicated situation- (Briefly, I’ve had acromegaly [‘cured’ by removal of tumor- hormones back to normal], have asthma, Crohn’s disease and central sleep apnea as the major issues- some lesser issues such as tinnitus, blurring vision, etc) My temps are always about 96.8-97 or thereabouts- blood pressure normal- in good range
I suspect there is an energy delivery problem- perhaps a fuel production problem- or something awry in the mitochondria or glucose problem (Chromium has helped some of the problems slightly- I doubt it’s glycogen storage disease as I never have dark brown urine) or something in the l lines of thyroid (because of the temperature regulation and energy issues I’m having)- but tests are always in normal range- my body is not getting the fuel it needs to function properly- I went from very active to sedentary out of necessity because of how weak and run down I get so easily
The symptoms I’m suffering from are kind of myriad-
Temperature regulation problems (Always said my temperature regulator is broken- cold in summer- but can go from cold to overheated very quickly- can’t get to a comfortable level very often)
Reynaud’s (Hands hurt just holding cold soda can for a minute or two- quite painful)
Cognitive issues (Hard to concentrate, think- follow complex things- was always quite smart and could always understand complex things fairly easily- no more)
debilitating weakness (with even worse ‘waves’ of weakness from time to time- feel really out of sorts, feel like going to pass out)
exercise intolerance (within minutes of walking, especially if there is an incline, my calf muscles tighten up- want ot cramp- won’t relax- after about 10-15 minutes I’m sweating profusely- dizzy, have hard time catching breath- shaky- have to sit down for 5-10 minutes- then can go further- but it repeats)
Burning Muscle pain all the time- it feels like lactic acid burning pain- it’s especially bad in my calf muscles, back, neck, arms, and shoulders- driving any distance over a couple of miles I have to keep switching arms for driving as the pain becomes too much- I have to keep laying my head back on couch to rest the muscles because the burning pain is too much to bear) Again, I feel as though the muscles simply are not being supplied with enough fuel
I’ve had nerve conductivity tests run- no myopathies were diagnosed- been to rheumatologists, infectious disease doctors, endocrinologists- all run basic tests- don’t find anything obvious, and never hear from them again- I think they just chock it up to me having Crohn’s and leave it at that- (I’ve always suspected something else was going on- some problem in energy usage somewhere along the line of food to energy in the cells process in the body- though I don’t know- it just seems to me that I run out of what little energy I have very quickly, and get run down very easily- far too easily) Some suggest Fibromyalgia- but I have no tender points 9although my sleep study test the doc said I exhibited brain wave patterns typically seen in fibro patients)- some suggest ?Chronic fatigue, but I have no trigger points-
This all began at age 30- I’m now 50 with no diagnosis- yet it has steadily progressed to the point where everything is now a major effort and if I overdo it, and I’m talking about say raking the lawn for 2 hours- pushing through the pain- I suffer for days feeling very weak- out of sorts, dizzy, shaky etc-
It’s been a long frustrating 20 years- my prime years stolen from me by something- and I can’t seem to find a doctor who will investigate beyond just very basic standard tests- The last endo doc I had told me “Don’t worry, We’ll get to the bottom of this” Ran very basic hormone tests=- not even the complete line of tests (I was concerned about pituitary issues again- which require some pretty intensive hours long fasting tests- this doc just ran basic blood draw tests-) and that was last I heard from him-
I guess I don’t know how to explain that the weakness is debilitating well enough- (Had one doc say “I get a little tired too”)- I’m not tired- I’m exhausted- wiped out- I feel like I have the flu 24/7- I get no relief from it- It’s very similar to having the flu- one where it drains you of energy, and everything you do is a major effort- and you just want to sit and do nothing because you know trying to do anything is going to drain you further to where you collapse on couch in exhaustion- That’s my life now- every day- no let up- 20 years now (although in first 10 or so- it was better, but slowly/progressively getting worse)
Meh- I guess my question is, does any of this sound like maybe WS? If not, does it sound like something else you might be familiar with? I’ve had Crohn’s since age 7, was very very sick with it in my teens- had operations etc- felt great for 13 years- then wham- something happened and I started getting weak with symptoms described above- My point being that My Crohn’s is not active right now, nor has it been for 20 years, but I’ve just been progressively getting worse and weaker and weaker– and I suspect it has to do with the muscles not getting the fuel they need to keep going- something in the energy supply process seems broken to me- and I don’t know what or how to help repair it if it is-
Hi Bob :)
Yes, your low body temperature could certainly be contributing to your symptoms and normalizing your low body temperature might have a big effect in the way that you feel. Best wishes, Dr. Wilson
In reply to Kim, who posted a question on Feb 7th 3014 about your hot flushes every 40 minutes, I had the same thing happen a couple of years before the onset of Menopause. Every 40 minutes I would take off my cardigan as a hot sweat built up, and then about a minute or so later I’d start feeling really cold and have to put it on again. (It was winter time.) This would go on …and on! I read in a book once that this was due to some inner bodily cycle that takes about 40 mins, but i can’t for the life of me find the book or remember any more details. So sorry. I hope this alleviates some of your concern. I did eventually get over the hot flushes, but am currently suffering from low body temperature! I wouldn’t want to be without some excitement now, would I? haha
I have always noticed that my Basal Body Temperature is lower than the norm. Recently I have had a lot of unexplained weight gain, issues with my menstrual cycle, increased sweating, depression, fatigue, water retention, and pain in my joints. I have also had a bad pain in my right side on and off.
I have had multiple tests done, including a full blood panel, ultrasounds, etc. The only thing that came back irregular was a higher than normal platelet count, and a higher monocyte count.
Could this be Wilson’s syndrome?
Yes, Wilson’s Syndrome could be contributing to your complaints.
A recent CBC indicted that my T4 level was high and my T3 level was low…..Any suggestions. My body temp is usually in the 97-97.7 range
Hi Steve, if your TSH is normal and your temperature is low then you might have a T4-T3 conversion problem. Low temps can explain symptoms and normalizing low temps can often correct symptoms.
Okay how does one fix it please. I can see what occurred with me. My temperature was at approximately a degree to two degrees off. The headaches are quite painful. When any type of stress is involved. My hair had been falling out and I had been diagnosed with Hashimotos. However, this appears to fit me better. How does one cure it please. I would like to have a life.
Here is more information on how to approach correcting low body temperatures: http://www.wilsonssyndrome.com/restore/fixing-the-problems/
Hi Docotor Wilson,
I am wondering can cytomel be used as a part of this cycle?
Cytomel is T3 and can be used to treat WTS. However, Cytomel is instant release T3, and therefore, tends to more often generate side-effects of T3 level unsteadiness such as shakiness, jitteriness and palpitations, as compared to the use of sustained release T3.
And are ND doctors listed on your website under the section of those trained in WT3 protocol actually clinically trained and thoroughly understand this condition?
Since they are not medical doctors, how do they administer and therapeutically monitor the patient while using t3(cytomel)?
It depends on what state they practice in. Different states afford NDs different prescribing rights. For example, NDs in Oregon and Arizona can prescribe T3 while NDs in FL cannot. All the NDs on our list have attended certification training in WTS. You can call them to find out if they can prescribe T3 in their state. Best :)
Hi Dr. I am very worried about my husband, see I don´t know if it has to do with his thyroid. He is experiencing really bad heat in his body, as soon as he starts working around the house he feels his body temperature rises and starts sweating severely.
We´ve gone to Drs and they don´t seem to know anything about this… is there some direction you can point us to?
Yes, I recommend that you measure his temperature with a thermometer. Some people with low temperatures feel hot all the time.
Hi, Im from Australia needing help. Can you have a high temp from Wilson’s. Doctor finally tested me for glandular fever which came back positive ever since (now 9 months) i throw off 37.5 degrees Celsius temp but normally run at 36.7 i have almost all of the list symptoms issues above. I have been told i have raynauds, on the waiting list for carpel tunnel tests, doctors have fobbed me off after a blood test or 2 and i keep having to search for info and request test like the Gf, Im mum of 2 and 31 years old in lots off pain and not sure what to do next
Hi Monique! You may want to check your temperature with another thermometer to make sure it’s accurate. I do think that a slightly elevated temperature could cause the symptoms you’re reporting, but I don’t believe WTS causes a high temperature. It may be that you have some kind of infection, such as Lyme disease.
Hi Dr. Wilson! I’m 54, I’m 5 feet, and 2 inches. I’m thin, and in great shape. My problem is I freeze. Today in Georgia, was 99. I wore skins and a long sleeve shirt to shop. I even took my coat. My eyelashes have almost fallen out. I can’t stand really hot weather either. We will be going to Florida in a week. I always take my coat because the restarants are cold. My family laughs at me. I also feel kind of blue sometimes. I hide it from my family, but I’m dying on the inside. I have always been the happy one, but not lately. I have never had a hot flash.My Dr. Says I’m in great shape, but I needed to eat a liitle more shugar because it was low. I don’t know what to do or who to see. Do you know of anyone in Atlanta that could help me? Thank you!
Hi Dianne! You can check here for a doctor near you: http://www.wilsonssyndrome.com/patients/medical-providers/
I will also be happy to work with your doctor for free to help him/her help you.
I just got my labs back thyroid panel was normal also low on vitamin D, and adrenal low or high…. I forget all the time foggy…weight gain, depression, numbness of hands, body aches, salt & sweet craves, low libido, weak, fatigue, dry scabby scalp that itches with loss, dry skin, raspy voice, easy to get sick, eyes are always itchy or ache like tired because I suffer from insomnia plus I have sleep paralysis and often wake a well as night sweats. My current temp is 98.6 can you give me info to read up on so that I can discuss with my Dr because she really listens but I just switched to her. I’m getting worried I hear bad things about aderal glands like tumor being cancerous or benign.
It’s possible that your temperature is low and that your thermometer is inaccurate. You may want to try checking it with another thermometer. You can try Googling “adrenal fatigue” for more information.
I have almost all the symptoms, but have always been told my thyroid is fine. I just had a blood test. TSH is 1.87, Thyroxine (T4) is 5.5, T3 uptake is 1.1, and Free Thyroxine Index is 5.0. I usually have a temp of 96.8, or a little higher, but never 98.6. I always have had cold hands/feet. Now I freeze if the temp is chilly and burn up if it is a little hot. I want to live where it is 50 – 60 degrees. :) I sweat just washing my face and making my tea. I’ve had hot flashes for 20 yrs. and 5 mo., but it is NOT that. I sweat like I’ve been exercising hard for an hour. Hot flashes are more on the inside, and are really different. Are these blood tests the best for thyroid problems? Could my symptoms be from my thyroid. Does this run in families? Thank you very much!
Menopause can contribute to a tighter range of comfortable temperatures. Below this range, easy to get cold, above this range, easy to feel hot. You point out that the sweating you have is different than that. Low body temperatures can contribute to sweating abnormalities. The best measure of the metabolic rate is the temperature. Thyroid tests only show whether your thyroid hormone supply is adequate, not whether your temperature is adequate.
Hello. I have a serious medical issue where my head feels like it is on fire. It can come and go in waves, but lately is usually always there. You can actually feel the heat radiating from my head. It makes me sweat something awful. It also makes me feel like I have the flu and my life is severely impacted. I have severe difficulty sleeping and have to sleep with ice packs on my head that I switch out constantly. I even have to use them during the day a lot. At the same time, my hands and feet all always freezing. I live in Texas and cannot go into any air-conditioned building without a coat. Its like my body is not able to control its temperature. My head is on fire and my body is freezing, then my body is hot, then freezing again. I am 52 years old and went through menopause 10 years ago. My temp is usually low, around 97.6 or 97.7. 2 1/2 years ago, I got very sick with all the usual hypothyroid issues to the extent that I had severe myxedema and was in and out of the hospital/doctors, etc for six months before they figured out my TSH was 80! My family doctor said my thyroid had been fine 6 months prior so hadn’t thought to check that. Since then, I have tried Synthroid, Armour, Cytomel, and Tirosint (there may have been one other drug). I stopped the Cytomel after six months as it appeared to make the heat in my head worse. I was using it in conjunction with Synthroid. I am currently on 175 mcg of Tirosint. It has been slowly raised over a long period of time, trying to get my numbers in an OK range, but recent labs say my T3 and T4 are fine, but my TSH is 0.1. I have never had one month in that 2 1/2 year period where my T3, T4 and TSH are all in the normal range. I have to mention that I was diagnosed with Lyme disease. I did three years of treatment for it from 2005 through 2008 and started a new treatment protocol in early January. Do you think I have your syndrome? Do you have any ideas on what the fire in my head is about? Do you think your T3 product would work for me? Thank you kindly for any advice you can give as I am at the end of my rope. I have seen too many neurologists, endocrinologists, doctors, etc. and am so frustrated at not having an answer for this head on fire thing.
Hi There! I have seen low body temperatures like your account for all kinds of symptoms. Remember, the only cells not affected by thyroid hormone are the ones that don’t have DNA. Of course, all your cells have DNA. Therefore, low body temperatures could contribute to almost any symptoms. I’ve heard of a lot of people with low temperatures feeling “hot all the time” and sweating excessively during the day or night. I can’t recall anyone saying their “head is on fire.” I’d say that the only way to find out would be for you to find a doctor that can normalize your temperature to see if the symptoms resolve. Tyrosint is T4. When people can’t normalize their temps on T4 then I recommend T3. And it isn’t just a matter of using T3. It’s a matter of using T3 in such a way as to normalize the temp. Best :)
I have a roomate that is freezing in 90°temperature inside he was bundled up the ither night inside house no fan or a/c temp said was 90°what can I do to help him
A low body temperature could contribute to these complaints. On wilsonssyndrome.com he can find solutions to help him increase and normalize his body temperature and this may help him considerably. Good luck.
I do figure competitions… I have done 5 shows and my Prep is usually about 16-12 weeks long to get my body fat down and ready for day i go on stage. I stay 100% strict on my diets and they are very specific with fats carbs and fats…. I started noticing at about 5-6 weeks out my body/metabolism would kick into gear and i would start to drop weight faster than normal which would result in me cutting back on cardio and eating more food/ carbs (most competitors would dream of this happening) This last show i did was the worst. I cut out all cardio and stimulants at 5 weeks out… i was dropping 4-6 lbs a week…. started eating 7 times a day every 2 hours with carbs in every meal. still was dropping so i then had to eat another meal right before i went to bed. it seemed like no matter how much i was eating i was burning it off. I went and got blood work done a month later and all my blood work was normal but the doctor said he could tell that my levels were very high previously… He think i have Hashimotos… now my weight is up for me but i have been trying to lost about 5-10 lbs and my weight is just staying… my temp for the past 3 days has been 98.1, 97.0, 97.4…. do you think this means that i a now hypo. the way hashimotos was explained to me was that it can go either up or down… Do you think t3 would be something beneficial for me.
Yes, with Hashimoto’s the temperature can go up and down and T3 can be helpful when it is down.
Hello Dr. Wilson,
My father is 46 years of age. About 10 years ago is when it all started. We were walking about 4 miles a night for a few months and he was in pretty good health. He started getting shortness of breath while going on our walks. A couple of days after the shortness of breath started he had a week or two of heavy sweating while sleeping. After the heavy night sweats were over, he wasn’t able to sweat and started gaining weight rapidly until he got around 300-310lbs. He was 6′ tall and now 5’11″1/2. Everyday fatigue, water retention, etc.. He can’t get a good nights rest even while using his CPAP machine which he has been using for a couple of years now for sleep apnea. He is taking metoprolol for high blood pressure. Every few weeks or so he gets these full body shivers for no reason that last for 10 minutes to an hour(while completely conscious and aware). Let me know if you are aware of what these symptoms could be from. I forgot to mention, the day after the night sweats stopped he went to bed and awoke in the morning with crazy water retention and the water retention has been persistent to this day.
Hi Justin, This is a very nice history you’ve provided here with very interesting clues. I can’t say that I’ve ever heard of a case exactly like your father’s. It would be interesting to know if he has low body temperatures because I do know that low body temperatures could explain some of these symptoms. I presume he’s been evaluated by a cardiologist.
I delivered a child in nov2013, in my post delivery tests, I found my TSH very high. But my doc said that post delivery thyroid often gets normal within sometime so he waited before starting a treatment..In mean while i also started having bad headaches on which i found my bp very high and was put on medicine luxon20(nicardipine) . Still after a year when my TSH had not gone down (10) my doc started with levothyroxine 100mg but I never had any symptoms before starting the medicine like weight gain, puffy face, sweating all these symptoms came with the treatment and my BP fluctuates from normal to (140/94- 126/90) I wonder if I have WTS? …Your advice will be appreciated …I would also like to know why WTS is not considered as accepted medical diagnosis when so many people are benefiting from it…I have recently shifted to Switzerland from France therefore I have to look for docs and start the treatment all over again…Thanks in advance
Yes, if your body temperature is averaging below normal then you may have WTS. Many people are benefitting from treatment for WTS because it is an accepted medical diagnosis among many physicians. Whereas there are hundreds of medical research articles that support the existence and treatment of WTS, there are no research articles on WTS per se, that’s what some doctors are waiting for.
I have a ton of the symptoms of WTS and I just realized that my temperature has been around 97.7 and lower for days now. I also just started having stomach aches and feeling like I’m going to throw up, is this because of my low temperature?
Though it’s possible, stomach aches and nausea are not typical symptoms of low body temperature.
Hi Dr Wilson
So thrilled to have found this information. I’ve suffered from migraine headaches for decades but since going through a divorce 12 years ago they got significantly worse and I’m taking daily painkillers, Topamax and Inderal and Imitrex to try and have some sort of life. I workout four times a week, don’t drink or smoke and eat a very healthy diet. I go to acupuncture and meditate and still can’t get these headaches under control. Also sinus headaches and issues. They put me on antibiotics for 6 weeks and it didn’t help sinuses just created some digestive issues that I’m correcting with probiotics and digestive enzymes. (I have no gallbladder either)
I tried a very restrictive (almost) fasting diet about 6 weeks ago and have felt terrible ever since. Even more migraines, hot,hot,hot flashes, muscle weakness, fatigue and losing my hair. I did the diet because I had unexplained weight gain. Most of the time now and previous years I am always cold.
I bought a proper thermometer and for the last couple of days have been taking my temperature as per instructions. 97.4 F, 97.8 F, 97.7 F, 97.3 F, 97.2 F.
I know it’s not a big difference from what is normal at 98.6 F but do you think I could have WTS?
I will continue with the temperature taking for another day or so.
I live near Vancouver,BC Canada and have a DR’s appt with my GP on Monday, Sep 21st. I’m so hoping I will get some answers. I’m going to him with articles and will ask for blood tests and also show him my temperature readings.
I am really hanging all my hopes on this being my answer. Oh, my heritage is Celtic and Native Indian.
Certainly your temperatures are low enough to easily explain migraines. I’d say your low temperatures are, by far, the most likely explanation. Good luck.
Hi doctor Wilson I have a temperature around 35.2 degrees I feel healthy in all other ways although I do have night sweat where the bed is ringing wet even when I have no clothes on. Should I be worried about my temperature and what can I do about it. Thank you
I don’t think you necessarily need to worry about a low body temperature if you have no bothersome symptoms. However, if you do have annoying symptoms then your low temperature might explain them. You can find solutions about how to normalize low temperatures on wilsonssyndrome.com
I have a body temperature consistently at 97.2. Most all the symptoms of hypothyroid. Levothyroxinhas not helped . Testosterone is 212. Have anxiety and depression. Any suggestion also have many symptoms of metabolic syndrome.
Yes, I suggest that you visit a doctor on our list to see about normalizing your low body temperature to see if that will help. Alternatively, I’d be happy to speak to any of your doctors for free about your case.
Dear dr. Wilson,
I had a subacute thyroditis that lasted about 8 months. It was followed by a flu. Ever since then I am hypo taking 30mg of Armour. Even though I am feeling a lot better, I still don’t feel very healthy. My body temperature has always been 98 and above but after the illness it averages 96.5. My hands are cold and tingling except when it’s warm and my libido has been very low. For a while(6minths), I increased Armour from 30mg to 60. TSH went down from 3.2 to 1.1 with no change in T4 and a 0.3 increase in T3(from2.9 to3.2) but not feeling any better. Do you have any suggestions for me? Thank you
Surely Moe :) If your dosage changes aren’t normalizing your temperatures then they aren’t fulfilling their purpose. You may want to get with a physician that can adjust your thyroid medication and treatment in such a way as to normalize your body temperature. You can find doctors listed on Wilsonssyndrome.com, or I can speak with your doctor and give him/her some guidance on normalizing your temperature (your doc can call 800 420 5801)
How do I even start to tell my Dr?? I hve been in and have complained to about 90% plus all the above, I get the thyroid blood test done regularly but does not come up as a problem… I’m my heart I know this is what I have.. It is the first time all my syndromes all all there in blk and white.. The temp thing now reading g actually scares me more as I will go in the tub sometimes twice a day to bring it back up always sleep with heating blankets and sometimes still cold while others are sweating.. I can not get warm again on my own, I hve had a handful of time where I get blue and shiver with shaking teeth when I can’t get to a tub or heating blanket, dr doesn’t seem to be shocked at all :( I knew it wasn’t normal!!
You can point your doctor to Wilsonssyndrome.com or to restorativemedicine.org. You can also have your doctor call 800 420 5801 to arrange a free consultation on your case. We’ll help your doctor get you fixed up. Or, you can find a doctor on wilsonssyndrome.com
I was just laying on the couch tonite shivering to beat the band. All blankets on. Couldn’t stay awake. This has happened for years. Heat is on, it’s at 71 F. Tonite after about an hour of semi-conscious shivering I made myself get up to make sure not sick. Nope. 96.2.
I ve run usually 97.2 to 97.4 for as long as I can remember and feel crappy with a “fever” for me and sick when it s like 98.9 or 99. Been on Synthroid since 18. I m 41. My mom had her throid killed. Her mom had goiter. I ve gone from 160lbs to 212 and not sure how. Yes I m tired all the time, cranky often, carpal tunnel? (numbness in both hands a lot), wheeze a lot, (pulmonologist says I m fine), never liked/wanted sex (never knew why), I loose hair regularly (see scalp on top a lot), I have lots of excema, my eyes are often gritty like something in em but lube drops fix it, sometimes a finger is so numb & cold fingernail is blue (Renaldyds??), headaches since college that no medicines ever stay helping, I frequently soak my sheets at nite so I keep towels by bed to cover wet areas so I can go back to sleep, I get hives on my chest and inside arms periodically, *my endocrinologist has tested my TSH/Free T4 on & off forever at my request and always says I m fine (2.2- low 3’s), most recently since 7/15, i ve had such bad hip pain and my feet always hurt that to get around I use a cane AT 41!!! (MRI s dont show anything to explain these). Pleeeeaaasee tell me there is a Doctor almost ANYWHERE in Iowa that treats this stuff like I ve read u do. I m in middle of Iowa but WILL TRAVEL. Oh, I have not taken my temp 3 times a day/kept journal yet. Just found your sight tonight. My parents both died from cancer this year, I had to divorce an abusive husband, move towns, and now the hardest is trying to mother my kids when I can’t do housework/shop w/ out walking probs/hip-foot pain, and just be a regular 41 YEAR OLD MOM. I am desperate. I m sorry this is too long. Never found anything like this. I don’t feel so crazy. Thank you for even reading all this. Heidi
Hi Heidi! You can look for a doctor here: http://www.wilsonssyndrome.com/patients/medical-providers/. Also, I will be happy to discuss your case for free with any of your local doctors, if you want. S/he can call 800 420 5801 to make the connection. Best
I have a body temperature of 96.3 for as long i my life as I can recall. I have fought weight gain my whole life (resorting to 1000 calorie/day diets and 2 mile daily runs just to MAINTAIN by weight. About 8 years ago, I was diagnosed with Dermatomyositis…and have been on prednisone and methotrexate ever since. Current age: 54.
Running is now totally out of the question these days with the amount of core muscle loss from DM, and I rarely can get more than 3000 steps in a day. Needless to say, happy about being able to walk….but severely unhappy with losing the battle against weight gain. I would love the fighting chance to increase my metabolism. Lower weight would increase my walking abilities, which would allow me to do even more exercise!
Yes I know…Pred is bad, bad, bad. However, these meds took me from not being able to walk, to being able to walk…and I have had no bone loss or other side effects. My dosage is down as low as we can get them, without seeing spike increases in my CK counts.
I have had thyroid tests in the past, and they have always been negative. Is T3 levels something that would have shown up on previous tests?
Hi Ann, thyroid tests can all be normal, including T3, and people can still have low temperatures that cause them symptoms. Thyroid tests will never be able to measure metabolic rate because thyroid blood tests can’t measure the body temperature.
Hi Dr. Wilson,
My 17 yr old daughter has been experiencing symptoms consistent with hypothyroidism including daily body temperatures around 97.2. Lab results for her thyroid were all within the normal range and I have had 2 doctors tell me there are no thyroid problems. However, she had a TSH of 1.1 with a free T4 of 0.9 (lowest end of normal range was 0.8). I thought her TSH would be higher with a lower FT4. Also, the FT3 was 312 which isn’t as low as the FT4 (normal 287-455). Does that mean the conversion to T3 is not the problem and therefore T3 wouldn’t help? I would appreciate any help. Thank you
Hi Kim :) Her normal TSH means that her she is producing enough thyroid hormone from her gland. Her low temperature means that she has inadequate thyroid hormone expression in her cells. Low T4 to T3 conversion is a likely possibility. People can have all kinds of numbers for FT4 and FT3 and still have low temperatures, and when their temperatures are normalized that’s when they tend to feel better.
My daughter has just turned 3yrs old and has struggled with enlarged tonsils, adenoids, thin hair (hasn’t grown past her nape of the neck), poor/restless sleep, and maintains a regular body temp of 96.3/7. We’ve done allergy testing, diet changes of no dairy, gluten, or refined sugar to try and help with the swelling of her little throat. Desperately trying to fix the root of the problem rather than try another round of medication and/or surgery. Thoughts on this approach helping her at all?
Surely, normalizing her low temperature might be part of the solution for her health issues. I’d be happy to consult for free with your daughter’s physician.
For the last several years I stay cold most of the time hands and feet severly but have chills quite often even when clothed or covered heavily . What causes cold flashes and can anything be done or taken to help very uncomfortable situation to have
Low body temperatures due to Wilson’s Temperature Syndrome could certainly explain cold flashes. This area of the website discusses some things that can be done about it: http://www.wilsonssyndrome.com/restore/fixing-the-problems/
I have been on Armour Thyroid for a while now 90mg but I am still extremely cold I cannot seem to warm up I am always cold and I still have symptoms of always being tired, muscle and body aches and my hair is still thinning. I don’t know what else to do.
The purpose of thyroid medicine is to normalize the metabolic rate (body temperature). So if your temperature is still low then your thyroid medicine is not adjusted correctly. Armour contains T4 which can suppress the enzyme that makes T3 (the active hormone). I recommend you visit on doctor listed on wilsonssyndrome.com
I’ve been reading the site and think this could be what I have. Symptoms that i have include feeling like there is a lump in my throat, swelling of the lower legs, unexplained weight gain and low temperature of around 97 degrees. Currently, I’m being treated for acid reflux although i have no symptoms of that. I live in Missouri and there are no doctors listed in Missouri. Do you have any recommendations on what I should do?
Hi Patricia :) I will be happy to discuss your case for free with any doctor of your choosing. Your doctor may call 800 420 5801 to make the arrangements.
I had major abdominal surgery on 8/24/15 and have had a low body temp (as low as 96.3) ever since. Before surgery, my temp was always around 98.6. My WBC is normal. Because of my low body temperature, is it possible to have a “hidden” infection that does not cause my WBC to elevate? If yes, how could such an infection be detected? Thank you!!
Hi Jena, I know that the stress of a surgery can lead someone to have a persistently low temperature. I’m not sure about an infection causing a low body temperature. Usually, infections cause people to have increased body temperatures.
I am 51 and retired military. A few years ago the VA said I had low thyroid and prescribed me with Levothyroxine. I have asked where does this come from and the VA would not give me a straight answer.
My entire life I have had low body temperature 96.6 regularly, but was never prescribed anything for it. Everyone I knew growing up would say to me I would be bald before I was 25 because of my receding hair line even as a teen; the top is gone and I just have hair on the sides. Growing up and now living in the northeast every winter my skin would and still becomes so dry. I get up every day at 4am and workout either at cardio for 30 minutes or an exercise tape that I purchased from TV (Insanity,P90X). The cardio benefits I get from these are great but the weight just will not come off and if I stop for just a few days the weight will start going up. I swore off sodas, I drink primarily water with the occasional hot tea. I have a salad at least one meal everyday but the weight still will not decrease.
I stumbled on to your website by accident and saw some interesting things that match what is going on with me. I read that a traumatic event or stress can be a precursor. While still in the Army and deployed to Iraq in 2003 I was involved in an explosion twice in the same week; that was kind of traumatic. I was not physically hurt by these but am prescribed with PTSD.
I have read that this is mostly a woman thing but I am a man. Could this be what has been my issue from childhood?
Yes Jeff, this can certainly affect men and it can start early in life, especially in people whose ancestors survived famines. Regardless of anything else, a low temperature can easily explain difficulty losing weight.
Hi Dr. My 12 year old daughter has been going through a rough patch since September of 2015. She was diagnosed with Migraines, she’s had dizzy and fainting spells and very recently after a minor injury they diagnosed her with regional pain syndrome. She is also showing signs of fatigue, is always cold, and gets cold if she drinks too much cold water. I also have cold sensitivity and have had hypothyroidism for 16 years. She has always had a low body temp of around 97.5 and we never thought anything of it. Could this be Wilson’s, or a possible thyroid problem. Her doctors have never addressed the possibility of either. Thank you for any input you can give.
Absolutely Erin. Low body temperatures can easily be explained by Wilson’s Temperature Syndrome and/or hypothyroidism. WTS is reversible too. Good luck.
I have had Hashimoto’s for seven years and was diagnosed with autoimmune gastritis about five years ago. I have terrible reflux and frequent stomach pain/upper right quadrant pain as well as IBS-D. I take Zantac and Armour Thyroid.
I am always negative for H-Pylori and have had my stomach and esophagus recently scoped. Mild esophageal scarring and a 2 cm hiatal hernia is all they found. My HIDA scan on my gall bladder came back normal. My liver is only mildy fatty and all enzymes are normal. They a stomach emptying test and swallow study as well. Swallow thank goodness is good. They did find delayed gastric emptying.
I have been off of gluten for several years and finally got off of dairy as well. None of this has helped, and even as we speak, I am sitting here with terrible upper GI pain, a bitter taste in my mouth and look pregnant my stomach is so distended. What am I missing? Could this be adrenal insufficiency causing this level of pain and bloating? I am desperate to get out of this mystery category and would be happy to show any doctor my pregnant looking belly if they thought I was making all of this up. Thank you in advance.
I am living through hell sometimes.
My pancreas and kidneys have been ultrasounded as well and they look normal. Pancreatic enzymes are normal. I also have no scleroderma or other connective tissue antibodies and my blood sugars are normal. Ugh! My DHEA has recently gone down. Adrenal is probably the only alley I haven’t explored. Thank you again.
Have you checked your body temperature? It’s one of the first things people should check, I feel. Body temperature is one of 4 “Vital signs.” I had a patient once with Irritable Bowel Syndrome that defied all treatment. Once we normalized his temperature, his IBS disappeared. The process took a matter of weeks.
Best regards :)
My BP is very low around 90/50 temp is between 33.1 °C and 35 ° C. My thyroid stimulating hormone came back upper limit T4 was lower limit and T3 was below normal. I am very cold all year round. Would a course of T3 be beneficial?
I can’t give you specific medical advice but I can say that T3 therapy is designed for people with low temps and hypothyroid symptoms. The T3 therapy is designed to normalize low body temperatures.
Hi I bought the thyrocare .. I need to get some info … I remove my complete thyroid .. I am taking 225 mg syndroid.. I want to know if to continue my meds
Hi Diane :) We can’t give medical advice over the internet. People that have no thyroid gland will need thyroid hormone medicine. ThyroCare doesn’t contain thyroid hormones.
Hello Dr. Wilson,
My husband has been on thyroid meds for over 50 years. When first discovered in the 60’s his thyroid was bleeding and of course not working. He has been on Armour and now Synthroid. Do due stress he has symptoms of fatigue, decreased mental clarity, intolerant to cold,etc. If his adrenals are low, we don’t seem to be able to find a doctor who feels the same.
There is a doctor in Indiana that is on your list. Please tell me your suggestions.
I have been a fan of yours ever since seeing you on “Your Health” with Dr. Becker.
Thanking you for any consideration.
Hi Sandy! I do feel the doctors listed on our website are a good place to start looking for solutions to low body temperatures. Good luck!
This is in regards to my dad. He has had an ongoing intestinal issue since 2011. He experienced extreme bloating, swelling, and not being able to eat. When he did eat, he would get very weak and have to lie down for about 30 minutes to an hour. He was seen by different doctors and 3 different hospitals and they could not determine anything but that his gallbladder being removed might help. He did have it removed and it did not help. He later learned after researching for himself and having other symptoms arise that his issue may be iron overload (hemochromatosis). His ferritin and hemoglobin tends to stay high. He does get blood drawn every so often and it does seem to help but lately he has been almost bed ridden from the weakness and dizziness he experiences. He can not get his doctor’s to cooperate with him on the testing either. My question is, can he be experiencing issues with his thyroid along with the iron overload and how can he get his doctor to help him?
Yes, people can have low temperatures while suffering from other conditions. In fact, suffering from other conditions can stress the body and cause low body temperatures that contribute to complaints. He can try going to a doctor listed on wilsonssyndrome.com
Hi Dr Wilson.
I’ve suffered from hypothyroidism for 9 years. I’m 29 now with three kids. I love life most importantly!!! Went to my doctor today explaining that I’ve had chronic fatigue, inability to sleep, extreme forgetfulness, even stringing a sentence together i can lose my train of thought. I discovered wilsons syndrome a few nights back and realised I always have a low temperature and I’m always cold. Temperature for the last few days was 35.7 Celsius. I told my doctor and mentioned the syndrome but she is insisting I’m depressed! I’m on 175 eltroxin and bloods are normal. What do you think?
I think that the thyroid system’s purpose is to provide you a normal metabolic rate and that there will never be a thyroid blood test that is an adequate measure of your metabolic rate because thyroid blood tests do not measure body temperature.
My body temp has been low for a while. Approximately two years now, and my digestive system has changed as well. Softer, lighter stools, that go through my system quicker.
I’ve had all kind of test and just recently a colonoscopy. I had my thyroid checked and my doctor said it was in normal range.
I would recommend you visiting a doctor on list of treating physicians on our website.
Hi Dr. Wilson,
For many years now I’ve felt that there was something wrong with me. I have nearly every symptom on the list – hair loss, extremely dry skin, anxiety, insomnia, an inability to lose weight (even when I don’t eat ANYTHING!), chronic fatigue, not feeling rested even after 10-12 hours sleep, blurry vision, aching all over, feeling hot when everyone else is either comfortable or cold, AND a low temperature. I was in nursing school 14 years ago when it came to my attention that my temperature was abnormal. We were learning to take vitals and the students practicing on me repeatedly came up with a reading of 97.2. The teacher took my temperature with the same result and told them, “That’s just her normal temp.” I thought it was odd; I can tell you for sure that I previously had a normal temp whenever I visited the doctor, unless I was sick – then, I would run a fever (I was a sickly child, and I’ve been as high as 106). At the time I was in school, I had just separated from my husband of 15 years and was under extreme stress. So, I’ve been to various doctors over the past 13-14 years and been told my bloodwork is normal (although a couple of times my then doctor told me my thyroid reading was “sluggish”, whatever that means!): also have been told I have fibromyalgia, I’m a mom so of course I’m tired, it’s the process of getting older, it’s menopause, and my favorite, “It’s all in your head, here’s some antidepressants.” Recently, I was told my Vitamin D level was low and to take supplements. I’m diabetic and take Jardiance, I also have hypertension and take Lisinopril, and my current doctor prescribed Seroquel for sleep. It worked at first, but doesn’t any longer. I’ve been charting my temperature the past 10 days because, once again, at my insistence, I’m having bloodwork and I see my doctor on the 19th. I haven’t been above a 96.6 once! And I’ve been as low as 95.8! I feel like crap all the time! I’m a nanny to two active little boys and I need to be well. My question is this – HOW DO I GET MY DOCTOR TO TAKE ME SERIOUSLY!? Thank you!
This is what I recommend: http://www.wilsonssyndrome.com/patients/recruiting-a-doctor/
When you find a doctor willing to help you then we will be happy to help that doctor for free, to help you recover.
You can educate your doctors as well with scientific references in this book:
Normal Thyroid function Test…..Elevated Antithyroid Perodidase.Elevated parathoramone. (Normal calcium and normal kidney function test Normal Vita D and Scans of Parathyroid were negative).Subnormal Temps 95.9 to 96.7 on waking consistently now for 4 years. Scan report shows several thyroid nodules and inflammation consistent with thyroiditis. …but am not getting treatment because my Thyroid numbers are all NORMAL….uuuugh…would I benefit from thyroid supplement. Only other issues going on now are low iron and protein in 24 hour urine also for 2 years now Elevated IgA poly colonal gammopathy noted…
I believe you’re asking about thyroid dietary supplements vs. thyroid hormone supplement. Since dietary supplements are not drugs, no claims are allowed to be made regarding treating any health problem or disease.
Dr. Wilson, discovering this website may save me .. ! I have been suffering from an un-recognized syndrome since the last 2 years, after discontinuing the use of Finasteride (Propecia) – called Post Finasteride Syndrome. I have delt with a tremendous amount of stress (at that point, and ever since), and symptoms seem to jive with WTS. Maybe your protocol can save me and get me back on track. My body temperature is very low (always below 36 C), I feel constant anxiety, a hard time sleeping and no libido whatsover.
How can I discuss this approach with my endo, and be taken seriously?
thank you very much !
Your endocrinologist may not be very open to discussing your situation. You can interview other doctors : http://www.wilsonssyndrome.com/patients/recruiting-a-doctor/
When you find a doctor willing to help you then we will be happy to help that doctor for free, to help you recover.
You can educate your doctors as well with scientific references in this book:
Comment…hie Dr i got the above symptoms. my temp is always at 35.2 degrees C . i am in Zimbabwe. how best can i get help ? i need the T3 therapy to normalise my body temp
Hi Brian, you can try speaking to a doctor local to you and then we can try to help that doctor provide you the help you need.
I have had numerous symptoms that could never been explained and I was always told my labs were normal. It has been on and off most of my life with different levels of functioning. It recently got so bad with chronic fatigue, depression, digestive issues, anxiety, and more that I have been on medical leave from work for two months. My Dr had me read your book & keep track of my temperature for a few days. 85% of the sx sounds just like me even down to ethical background and I have auburn redhair freckles and pale skin! The issue is that my body temperature is almost always below 98.6 & I can never remember running a fever in my adult life no matter how sick I was. I’m cold alot. I thought I’d finally found my answer and cure but my body temperature doesn’t average as low as most people with this. It averages around 98-98.3 but it is lowest during the day when it should be higher. Does the lack of a lower temperature mean I don’t have Wilson Temperature Syndrome and thyroid treatment won’t help me? Also I’m a little nervous about taking thyroid meds. My Dr talked about Armour 60mg trial. Are their risks to taking thyroid meds if I’m not 100% sure it’s my thyroid? If it’s not, will the meds hurt me or make me sick? Thank you and even if this isn’t what I need, which I hope it is my answer and cure so I can get better and back to life but even if it isnt, I want to thank you for your hard work in discovery this because I know it had helped so many people.
I recommend working with your doctor to test thyroid hormone. It sounds like he/she is well informed and can be very helpful. Best of luck!
Hello ..Im only 21 and haven’t had a doctor say anything about my thyroid but I have almost all of these symptoms. Just today I got a terrible headache and felt as if there was a golf ball in my throat and then I got pale and my breathing was shallow. I then felt very faint so I took my body temp and it was 94.3 should I tell my doctor to run tests to check?
Wilson’s Temperature Syndrome is usually a long term chronic issue, but you can learn about what’s going on for you first by taking your temperature. There are directions here: http://www.wilsonssyndrome.com/identify/how-are-body-temperatures-measured/ and many articles on the topic on the website, including a long list of possible symptoms.
Best of luck!
Seriously….every thyroid test comes back normal. I have every single symptom above minus 3…hair loss, swallowing problems, and acne. Finally found a new doctor, and hoping she will get to the bottom of all this because it is beyond frustrating. So glad to have come across this site. Maybe I’m really not crazy after all…
Best of luck! Your doctor can contact me with any questions :)
I notice that Thyrocare and Cell Nutrition contain large amounts of iodine. I realise that iodine is necessary for a healthy thyroid, but am not sure how it applies to someone who has had a thyroidectomy – or in my case a partial thyroidectomy16 years ago. I was told that my thyroid was “doing nothing” after surgery by my GP. I also read that people with Hashimotos Thyroiditis probably are best to avoid iodine supplementation as it can raise the antibodies. It is all very confusing. I would be grateful for advice. Thanks.
I am interested in trying these products as I have all the symptoms. Like most thyroid tests, my blood tests always come out normal. However, I have had my thyroid biopsied 2 X, both times showing my thyroid has large nodules and are these are getting larger after each testing. The last endocrinologist recommended that I have my thyroid removed, given that they are growing larger and that my Mother had the same problems which culminated in her having a large goiter on one side of her neck. This actually was the cause of her death due to choking from the same. She too old to have the goiter removed. My concern is that if I take these supplements and not be under a physicians care, how will I be able to monitor this and how long should I be taking them That part of it is a bit scary. I have temps as low as 95.5 underarm, and no higher than 97.8. Lately I have had unexplainable sweats, accompanied by dizziness and even vertigo. I have been also having headaches lately. I have almost 100% of the symptoms listed above on this website.
Hello, It would be wise to find a physician to help you. There are some listed here: http://www.wilsonssyndrome.com/patients/medical-providers/ if you can’t find help locally. Good luck!
I’ve had insomnia and very cold hands , and realised I had very low temps. For many years after exposure
To trichlorethylene; brain unclear and ‘drunk’ . Have to be physically active ( I work on roofs when I can) to
feel better, (used to jog to feel ‘clearer in the head)
When it’s very cold my jaw freezes and I have difficulty speaking,
Body temps. are always in 35’s c in mornings , have been as low as 34.9c, I have to wear two layers of
clothes , even in the house.– I don’t sweat , on the odd occasion I’ve sweat in bed , I’ve felt better.
Don’t sweat in work unless extreme activity on roofs when weather is hot (as opposed to colleagues),.
I’m from UK where they oppose thyroid meds. when tests are ‘normal’ as mine are. Have slow metabolism
according to ‘hair analysis ‘. years ago, Type2 apparently.
Experience aching in Liver area, where doctors have found nothing Also have itching. after a fall through
scaffold with impact up under rhs. ribs onto Liver. High Lead shown after DMSA provocation test.
Numbness in right hand, have no confidence in orthodox doctors.
Chemical sensitivities – smells affect brain.
Anyone in the UK please?
Wow, i’m 22 and diagnosed with CFS, POTS & Fibromyalgia. I have almost every symptom on the list & my temperature is an average of 95F (even at night) which is considered to be the start of hypothermia yet my doctor said it was ‘fine’. I have a lot of heart related issues but ECG is always normal. I have skipped beats, tachycardia, brachycardia when falling asleep (huge adrenaline rush that then kicks me out of my sleep), severe fluid retention (lymphedema in arms and legs, swollen stomach/hands/feet/face) i weigh 130 pounds and am 5’9 but look like a balloon on bad days. My heart sometimes contracts so weak i can barely feel it (feels like its fluttering, chest feels empty) and i have frequent fainting spells where i start sweating, my heart goes very slow, i get pale & dizzy, i panic and then lose consciousness for idk how long.
Unfortunately my doctor (+ many other doctors and now my parents dont believe me anymore either) say its anxiety & depression but how can anxiety or depression possibly cause those symptoms? They cant. I fear every night i won’t wake up because my heart is going to give out, it beats so incredibly slow and weak it’s horrible.
OMG! I have been looking for a reason for my ” unique” problems for years. I cannot believe that I found this page. I gave birth in 1980. The labour was SO long and traumatic for me. The day after that I was attempting to feed my baby when the nurse commented on how I was sweating on my face. I was surprised too. Never happened for no reason before that day. Within three years I had to have both wrists operated on because I developed Carpal Tunnel Syndrome. I was only 20 when I had my first op. I am now 60. I have sweated my life away. Now in post menopause, the sweating is beyond a joke. I swear in the middle of winter.whilst everyone else is in winter clothing I am mopping my sweaty head, in a short sleeved top!! Now in the summer I can almost swim in my sweat. Horrible!! My body temp is always below normal. Between 35 – 35.4. I have lost a lot of my hair. I am quite moody. In fact I can relate to most of the symptoms of Wilson’s syndrome. Now I desperately need to be taking your medication. I have zero chance of having it prescribed to me in Spain. My endocrinologist says my thyroid is fine.!! What can I do?? Thank you
T3 therapy, herbs, and Fastercise are 3 ways we have of supporting healthy body temperatures.
Herbs and nutrition include: Guggul, Blue Flag, Ashwagandha, selenium, zinc, iodine.
Fastercise is a diet and exercise approach aimed at improving temperature. See Fastercise.com and the book: The Power of Fastercise. Good luck!
Hi, I have chronically low temperature (96 oftentimes) along with many of the symptoms listed. However, at last check, my T3 was high. Does this mean that I don’t have WTS or that treatment with T3 wouldn’t be helpful for me? Thanks.
No, many patients with high T3 levels still have low temperatures and symptoms. Many of them will respond favorably to T3 therapy.
This site is so good. Thanks so much for all your work on this.
Is it possible to have a low temperature and be totally fine?
Yes, it’s possible to have a low temperature and not have symptoms. However, some people that felt fine felt better when their temperatures were normalized, saying “I guess I didn’t know what normal felt like :)”
Hello Dr Wilson,
Does Wilson’s Syndrome effect fertility? Is it possible to get pregnant on your protocol without the use of T4 if mismanaged hypothyroid has caused past infertility?
Many women with low temperatures who have had difficulty conceiving have been able to conceive and have children while normalizing their temperatures with T3 therapy. Many women have been able to conceive and bear children taking T3 only, without T4. Many obstetricians are comfortable with T3 use in pregnancy since it does not cause birth defects and because hypothyroidism is one of the first things doctors check in infertility. However, most doctors think they can rule out slow metabolism with a TSH test, even though TSH does not measure body temperature or oxygen consumption. Best, Dr. Wilson
How do you measure for low body oral or rectal
Orally :). https://www.wilsonssyndrome.com/identify/how-are-body-temperatures-measured/
I have this SNP do you know is this the same as reverse T3 that ICC for ME/CFS were recommending sufferers to be tested for? rs2235544(A;A)
Risk of significantly decreased T4-T3 thyroid conversion, may worsen bone loss, brain effects see text at rs2235544
(Published 2008) Researchers noted that reduced fT3/fT4 ratios may be significant, since various bodily tissues and organs differ in their level of dependence on fT3 and fT4. They analyzed 18 SNPs of DIO1, DIO2, and DIO3 and measured thyroid hormone levels in 552 people on L-T4 hormone replacement therapy, and three healthy control groups not on L-T4 therapy (totalling 2513 people). Analysis was adjusted for age and sex.
• Among patients, the _minor_ allele of rs11206244 was associated with reduced fT3:fT4 ratio from 0.193 in Common homozygous to 0.175 in Minor homozygous (-0.18) p for trend = 0.004).
• Among patients, the _major_ allele of rs2235544 was associated with reduced fT3:fT4 ratio (from 0.196 in Minor homozygous to 0.177 in Common homozygous (-.019), p for trend = 0.01).
•A meta-analysis of thyroid-related traits reveals novel loci and gender-specific differences in the regulation of thyroid function.
•The CCND1 c.870G>A polymorphism is a risk factor for t(11;14)(q13;q32) multiple myeloma….