Fibromyalgia Syndrome (FMS) is characterized by pain in the muscles, joints, tendons, and fibrous tissues of the body, especially in localized areas called trigger points. The diagnosis consists of widespread pain lasting for more than 3 months. The pain is widespread as in above and below the waist and on both sides of the body. In addition, patients must classically have 11 out of 18 trigger points.
When pressed with a force of about 2 pounds, the trigger points are painful, not just tender. Also, patients are frequently troubled by other symptoms such as fatigue, brain fog, unrestful sleep, irritable bowel syndrome, headaches, decreased memory and/or concentration, chemical sensitivities, and others.
Fibromyalgia is a chronic condition, there is thought to be no known cure and sufferers are encouraged to learn to live as well as possible with the pain and other symptoms. However, many patients with Fibromyalgia have been completely cured with the WT3 protocol. Some doctors feel they can help most of their Fibromyalgia patients with this protocol.
Like Wilson’s Temperature Syndrome, the diagnosis of Fibromyalgia is not made with laboratory findings. The cause of Fibromyalgia is still unknown.
Came to this site whilst seeking some help for overheating and inability to regulate temperature. Right now I’m sitting in a cold room, with hardly any clothes on, fanning myself, whilst my children are huddled under a blanket.
Then I’ll get cold. And it feels like my internal body is on fire and my blood is boiling, whilst my outer body is cold, at the same time.
This is constant and driving me to despair and tears. I’ve tried black cohosh. Little improvement. Sometimes putting on socks will bring down my temperature for a short while.
I have fibromyalgia and am in late 40s and this has been going on for at least 10 years, whilst getting worse.
What I’ve read here seems to refer to low temperatures. Do you have any help or advice for my situation?
You can check your temperature. Some people that feel hot all the time actually have low body temperatures so it’s worth looking into.
I have suffered with chronic pain my whole life. I am 50. I often have low body temp. Currently I have an upper respiratory and sinuous infection. I am on z-pack, steroids, inhaler. I have a raging headache. I have been coughing up crud for about a month, when I started the meds it had become slightly green. Now it is real green. The Dr thinks in fine because I do not have a temp. I do not think I’m getting any better. I do not feel any better. I have not felt like eating for a week. Why am I not running a temp?
Some people with WTS don’t get a fever. When they get ill their temps go up from 97 degrees to 98.6. A lot of patients say, “I only have a normal temperature when I get sick”, or “I’d have to have a fever to get a normal temperature”. Usually their temps are much lower than normal.
Where can I find a Doctor that knows how to treat “WTS” Is there a place I can search for one in my area??? Waiting for your response. MFD
You can go to the ‘Doctors’ tab of wilsonssyndrome.com and you can try calling medaus.com
Did your program a few years back to get my temp up a bit and worked nicely . Recently tried and couldn’t get high enough without having palpitations . Went up 3 rounds . I do feel good and normal on the T3 at about 35 mcg . I feel like my adrenals are an issue as well. It would be nice to have an article on this site about the adrenal thyroid connection . I guess they call it the OAT axis- ovary , adrenal, thyroid. Do you have a talk or article on the subject ?
Yes, quite a few. You can find them by going to the home page and using the “Search” field in the upper right hand corner. You can search on the word “adrenal”.
I have fibromyalgia and CFS diagnosed 4 years ago but have recently come off all my Meds as I was feeling so hot I was sweating just walking across the room and in the UK it’s not hot!! My Gp is useless I am now trying homeopathy and took iodine for 3 weeks that helped but since stoping that all shmptoms are back with vengeance. What can I try next???
According to all of the comments that have been made here, I finally understand why I am so hot all the time! I have suffered for years with this. Sometimes I feel like I am going to combust then I will get a cold chill that immediately go away. I have suspected a thyroid problem for many years but every time I mentioned this to my Dr. [or any Dr.] they would order the blood work that would always come back normal. I have always known there was something wrong but couldn’t get a Dr. to agree with me.
I also was diagnosed in 1996 with fibromyalgia. I did have all the trigger points. So much pain, but it has subsided a whole lot compared to back then. Still have all the tenderness though.
My weight has gone way over the top. I am a small frame female who never had a weight problem, at least not overweight, more like not enough! I have reached the obese state, and have so many more of the symptoms I could go on and on. Please, any advice you could give me would be so appreciated.
Hi Glenda :), This website describes how to take your temperatures as well as some dietary and lifestyle changes you can investigate. You can also consult with a doctor on our list if you need help getting your temperatures up. Good luck :)
Hi there have suffered chronic headaches over 4 yrs small frame don’t eat a lot but put weight on, veins on feet and legs are well raised and painful to touch doctor finally while back suspects fibromyalgia but now you can see the fluid retention on legs, suffer terrible burning indigestion, and been told to take pregablin, just wish could feel better in late 50s feel in 80s any advice welcome thanks
Low temperatures can certainly contribute to symptoms like that.
I have Fibromyalgia and Hypothyroidism and have been taking Thyroxin for 3 months and my TSH has reduced to normal. However I still have most of the symptoms I had before and not feeling well. My temperature is always below 97.5. I live in the UK, what would you suggest I do next?
I would suggest that you discuss this with a doctor near you.
That way we can work with your doctor to help him/her help you.
Best, Dr. Wilson
Is it ‘too much of a stimulant’ to add Adaptogen while I am also taking the compounded T3??
(I am presently ‘capturing’ my temperature close to 98.6 via 45 mcg.) If okay, how many capsules per day.
I feel it would be extremely beneficial if all sufferers of Wilson’s Syndrome who reside in the same locale could ‘get together’. Perhaps this would enable us to more effectively approach a physician ‘as a group’ and interest him or her in becoming involved with the protocol.
If nothing else, perhaps others would be interested in exchanging email addresses or phone numbers so we can share experiences and encourage each other. I reside in northwest NJ. Is it acceptable to place my name w/email address & phone number on this post??
I have written to you in the (long ago) past and appreciated your response. (It was regarding physicians who claimed to be ‘on board’ with the Wilson’s protocol. However, once an (extremely expensive) appt. was made, the ‘turncoats’ would then make every attempt to encourage me to try Synthroid etc. and/or interest me in ‘their own line of supplements’. This happened to me five times over the years with the last incident being two years ago via a physician who is presently on ‘the list’. I did not return.)
I began the protocol in 8/2000 and have cycled on and off over the years. Pushing 69 years of age, my fibromyalgia has intensified dramatically! (I believe this is the result of allergic reactions of some kind.)
The T3 is not as effective as it was in those early years. I believe I am somehow ‘missing something’.
(The compounded T3 is purchased from the Medaus pharmacy in AL. I am very happy with pharmacist Steve and their overall service.)
The PA physician who has always provided the T3 Rx is many years my senior (and has not yet retired.)
He ‘monitors’ me as best he can. He is a wonderful medical doctor who has always integrated ‘alternatives’ in his practice. Due to his frequent seminar involvements etc., I have often (to no avail) searched for an additional ‘like minded’ physician ‘just in case’.
Thank you for your time and patience in reading my lengthy post and for answering my questions. Most importantly, thank you so much for all that you do to provide a better quality of life for those of us ‘on the edge’.
In HIS Grip,
Hi Sharon-Lee :) Yes, it’s often a great idea to take adrenal support, like Adaptogen, whenever working on an endocrine problem. It’s fine with me if you leave your contact information here, only, in general it’s not a good idea to leave your email address on a website like this because you may get a lot of spam (marketers have robots that scour the net for email addresses). Best :) Dr. Wilson
I am so excited to find this web site! I finished the new Hep C treatment in May, 2015 and hoped all the Chronic Fatigue, joint, bone, and tendon pain would subside. I also have brain fog, memory fog,irritability etc….and low body temperature. No one could fix me!! Its such a hopeless feeling to feel doomed to these symptoms…Then finally, my MD asked me if I heard of WTS, and said it fits me. He even had the manuel and has done the therapy himself. We looked back on the past year and a half of my many appts and my temp. was always a degree or so off. Im trying to share this new find with everyone I know who may be suffering from this. Today was my first day of treatment and Im very optomistic and cant wait for results!!!
I am having the symptoms of WTS for last 30 years and I have tried treatment from Ayurveda, Homeopathy, etc.. But no one could cure the problem and over the years it is worsening. I still don know in India (New Delhi) who can cure this disease. Please help if you can suggest any doctor or medicine for the disease, also from where the treatment can be started and medicine shall be procured.
Hi Alok! I’d be happy to discuss your case for free with any doctor in India.
After reading 7 thyroid books in the local library and countless NIH articles I have acquired many text friends who ask me to send them the info I have collected. It seems there are at least 3 out of 4 people I meet who have either themselves or a close relative who has issues (symptoms) of low thyroid or Hashimotos. The first thing I tell them is get on at least a prenatal type vitamin/mineral supplement and add a multi B, and additional B-12 to 2000 mcg. Increase vit. C to 3,000 mg, increase Vit. D-3 to 4,000 i.u. at least, add Zinc (with copper), Selenium 200 mcg. and Magnesium Chelate >400mg. and research starting on Iodoral,(book by Dr. Brownstein) and get on a good adrenal support supplement as well. Make sure it has the most adaptogens as possible! Then purge your pantry of any food with SOY (estrogenic), soy isolate, textured protein, soy milk, edema me, soy flour and tofu. Soy won’t allow absorption of Iron (causing infertility, hypothyroid-like symptoms) , B-12 (memory loss), Zinc (hair loss), Magnesium (panic attacks,anxiety and A-Fib), and Copper (iron metabolism, nervous system)! So if you’ve been eating processed food or eating fast food, both full of soy then you may be on the way to malnutrition. Only fermented soy should be eaten. Eliminate any goitrogens like brussel sprouts, strawberries, peaches, cabbage, KALE (estrogenic as well), peanuts, soybeans and fluoridated water too. Once you have cleaned up your diet from all these goitrogens then your thyroid will be able to function better when you add the T-3! Otherwise it will be an uphill battle. Just adding the T-3 when you are in a low nutrition state may not work as well. Even I added fish oil to fight inflammation to my daily list. So set the stage with a clean slate before adding the T-3 and you may be surprised of the outcome!
I have always had low temp, (yesterday afternoon 96.7) and do have to be really sick to even have a normal temp. I am always cold, but everything I read here says that this syndrome usually presents with a fast heart rate. Mine is not fast. I can have as low as 45 resting heart rate. Normal for me is 55 -60. My blood pressure is normal to low. I cannot eat more than 1200 calories in a day or I will gain weight. I do walk at least two miles a day. Still no more than 1200 or I gain. It is very difficult to loose and I am overweight.
I was excited to see this about low temp, but with my slow heart rate I am thinking this does not apply to me.
I have had thyroid blood tests and “always normal” nothing is wrong with you. When I mention the super slow heart rate, I just get blank stares.
Hi Judy :) Yes, some people with low temperatures can have slow heart rates.